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Thursday, 23 August 2012

My Absence

He who dwells in the shelter of the most high will
rest in the shadow of the Almighty. –Psalm 91:04
 
 
Hello friends,

I’m sorry I’ve only posted 2 posts in 1 year. My health got much worse, which affected my concentration, so I am no longer able to think like I used to. I part of each day semi-conscious due to various health problems, and even my vision changes from hour to hour.

However, through it all, I am at peace, more than any other time in my life. I feel the Lord near. I feel His guidance, His whispers, His comforts through the Holy Ghost. I am most blessed!! Depression and anxiety are gone. I get frustrated now and then, but not a true clinical depression.

In January I went through a divorce. I tried for 8 years to get permission for my husband to immigrate to Canada. Why it took 8 years, will never make sense to me. It was only a few years that we realized that this marriage would not work out. I had become too sick to help him in every way a wife helps a husband, and to help him adapt to a whole new culture. We wanted to stop the immigration process earlier, but we weren’t allowed to, unless we claimed that one of us committed marriage fraud, which would mean jail. So we just kept going through the torment of paperwork over and over and over, and the emotional turmoil involved. The Dr. suspected that a lot of my heart problems came from the immigration stress for so many years. When we learned that hubby would not even be allowed a visitor’s visa, and I’m too sick to go to another country, we decided it’s best if we broke it off, to give hubby a chance to fall in love and have a normal marriage with children.

In February I had a head injury that has also caused problems. They called it a mild TBI (Traumatic Brain Injury), with post-concussion syndrome.

In April a Dr. told me I need a heart transplant, so I guess one of the big problems with my brain is not enough blood getting to it. I won’t be getting the heart transplant. I don’t qualify for the transplant list, because I have other organs that are failing; and because lupus would attack the new heart too. Even if my health was better, I’ve been told that in Canada, (or possibly just my province) people who are on disability don’t qualify, because the gov’t doesn’t spend large amounts on us. I was denied a pacemaker/internal defibrillator a number of years ago. I am not a bit scared though, because every time my heart has stopped, if there wasn’t a medical person around to restart it, God would restart it, and He will continue to do so until my purpose is finished for being kept alive.

I’ve missed the blogging community, and I’ve lost a lot of friends because I was not strong enough to keep up with email replies. I’m hoping I can attend to my blog more often, but I might be using a lot of pictures rather than a lot of writing. I’ll do what I can. Thanks to those of you who have kept in touch with me through all of this. I hope to be able to start blog-hopping again.
May the Lord bless you as He has blessed me!



Wednesday, 21 December 2011

Struggles, But Protected by Angels





I’m struggling, but also I have felt like I was surrounded by angels' protection twice in 4 days. Went unconscious for 24 hours, then 2 days later, had blood sugar so high it usually stops a person’s heart, so passed out again before I could call 911. Mom is pretty much bedridden with bleeding and peeling and terribly painful feet, no Dr. knows the answer, so I’m trying to do more for her, when I can't do much at all. We have prayed and found a few helpful items, but no cure. I have had 4 organs go into partial failure, adding to 3 others that have been bad for many years. I am on medicines for 3 of those organs. One organ is my pancreas, so last week I was put on insulin. I had to take 9 pokes a day, (5 injections and 4 tests daily) then I got allergic to one of the insulins, so I had to add 3 allergy injections a day. Then I found out I was allergic to the allergy shot too, which made me go unconscious, so when I woke up the next day I told the Dr. I wouldn’t take that again. She said my life is in danger without that insulin, but it’s in worse danger with the allergies, so she’s concerned. Today I’m still having chest pain from the dangerously high blood sugar yesterday, but this too shall pass. It feels like I will stay alive no matter how many things go wrong with me, so I will just be expected to keep movng even with many organs failing. Eagerly awaiting the Lord's coming.

Before last week, I was very hopeful, because one of the medicines for one of the organs started making me think so much clearer and brought back my memory and I thought I had a new chance at life. But as always, whenever one thing gets corrected, lupus has to cause 3 other problems to prevent any advancement toward health. It’s discouraging, but I have the Lord, and He is my comfort and my strength.

I wish everyone could feel the peace and comfort I feel, even through pain and severe weakness.

Bless you all,
Sheila

Monday, 11 July 2011

ADAPTATION & ADJUSTMENT




Chameleons are so amazing. If you go to youtube and look at videos of them, they can hide in front of things that have many colors, even patterned fabric. They have been created with natural ability to adapt to every circumstance. The camoflage is for their protection.

Humans seem to have been able to adapt to so many changes of climate and lifestyle and disaster and change in income, change in family size when new babies come. It seems that one of the few things a body never adapts to, or get used to, is pain. I have had worsening pain since age 15. If a person lives that long with almost any other situation, they would adapt to that. Why do our bodies never adjust to pain? There are so many other health problems that come with long-term pain, which create more things to adjust to, while becoming more physically weakened, with less ability to be strong enough to adjust.

I have studies natural remedies for all my conditions, but now I need to study natural remedies for Multiple Sclerosis.

My mind and body is changing so fast, it's frightening. Things that used to take me 1 hour to write or do, now take 3 hours, and I don't have the strength to do much of anything. 10 constant symptoms at once while trying to do everything for Mom makes me spend progressively more time doubled up in pain every day. Like I said in post below, that has benefits for Mom, but I am not adjusting to this!

If any of you can find any uplifting thoughts or scriptures about adapting to unbearable circumstances, I would appreciate reading them so very much.

Thanks!



















Tuesday, 5 July 2011

A Benefit from Frustrations






Hello my friends. About 2 days ago, I noticed that during the number of hours that I can't move or think or talk, my Mom gets up more, and gets her own ice and drinks. My periods of uselessness help her to slowly increase her strength, and since my down hours are progressively increasing, her strength is also progressively increasing


It frustrates me that with my fibrofog, and forgetting due to trigeminal neuralgia attacks, that I have to keep reminding myself of the encouragement from the scriptures. I should remember these things! I guess that's why the Lord sent me such wise and patient
friends to remind me. Thank you all.




IF GOD SENDS A STORM, HE WILL ALSO STEER THE VESSEL.


Friday, 1 July 2011

HAPPY CANADA DAY!

Today would also be Princess Diana's 50th birthday. There is a very nice article and pictures commemorating her life @ http://bit.ly/lb9EES. Some people have said I looked like her sister as a teenager. Pic on left is me @ age 16.




Susie D. I'm not sure if you know how blogs work yet, but if you click on "3 comments" under the Wheelchair fiasco story, you will see where I replied to you. I will also reply to your kind words @ http://www.lifewithlupus.org/ . (Yes that WAS a plug for anyone with lupus. Great support group.) There needs to be a support group for people with multiple illnesses, because when we are suffering but don't know which disease is causing the problem, we just avoid them all. Some of what I wrote to you will be used in this update.


I kind of shocked myself to see that I have not posted for a week, when so much has happened each day. Since Mom came home, (June 20) I have been so rushed off my feet, or else crashing in pain, so I have not had the concentration or strength to think of what to say here. Today I am stuck in bed pretty much, except for a couple of crises that came up and needed my help, and doing laundry. Even on days I can barely move, urgent things happen or need doing.



The nurse came for her half hour this week. She will come again on Tuesday, as will the high school girl I hired for some housework and errands. So I am thankful for what little time they can spare, until my housekeeper finds a full time job, then we will go back to searching for an honest lady, which has taken up to 5 years at a time. I LOVE HELPING PEOPLE and that includes my mom, whom I respect and love dearly, but how i wish I felt better so I could do a better job.


I feel very weak because I complain a lot, which is a type of a cry for prayers and support, because I feel so alone physically in all this. I know I am being carried some, because if I used only my own strength, I'd be bedridden. I'm one step up from that, kind of like a zombie. lol. I complain because I don't handle all of this well at all. So many say I'm so strong, but I just see the things I am not getting done. Last night needed to go to the hospital again for pain and heart trouble. I am pushing myself past my limits every hour, then by 4 PM I a crash, not able to move or get either of us something to eat or drink. I take some meds and then by 9 or 10 I can help with a drink or soft food for Mom, and something light for myself. I just roll in pain when I crash, and I pray continually all day. It just feels like Satan trying to counteract everyone's prayers by creating another crisis every hour. Things that never happened before are hitting us all at once. Adds greatly to the hardship.


I AM thankful for all my blessings, but without strength to meet your needs each hour, all the luxury on earth is worthless. About every 3rd or 4th day I spend the day in a semi-conscious state. (part of lupus and diabetes). I told the Dr. my whole new set of symptoms, and he checked my records and said "Well, looks like you are having your first flare-up of Multiple Sclerosis." Oh great. As if I need that on top of everything else. It made me realize why so many local people, even church people, don't want to be our friends. I can see them saying "It's impossible for one person to have that many diseases!" I can hardly believe it myself, and I live with them, so how could others believe it? Did you know Job, in the Bible, only suffered for 5 months? That seems to barely compare to people who suffer for 50 years or more. I was hoping all this extra physical activity would help me lose weight and make me healthier, but I gained water/fluid weight due to heart failure/damage, and I'm getting worse every day, not more healthy. One good thing about this is that I don't even have the strength to worry about tomorrow, because I'm just concentrating on what needs to be done in the next hour, then just collapse instead of relax. Wow, I have spent almost 12 hours writing this in between keeping busy and crashing.


Thanks all for being patient with me. I think if I had even one local friend or a spouse to talk and help, maybe I wouldn't seek prayers and support so much online.

Bless you all,

Sheila



P.S. Please pray for a friend (Pia Go-Alano) and her father. They flew to China for her father's cancer treatment, because this one hospital has such a

high success rate. You can read her daily updates @ www.piasjournal.com .

Is anyone else on blogspot having trouble with spacing? I have now tried 5 times to move all the paragraphs closer to each other and save them that way, but when I "view blog", they are always far apart from each other again.



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