Reply to previous blog and explanation of new unbearable pain
Bluebirdy (who is a little blue lately.)
Posted by Bluebirdy at 21:38 0 comments
Labels: faith, fibromyalgia, lupus, pain, prayer
Posted by Bluebirdy at 21:32 0 comments
Labels: faith, fibromyalgia, lupus, pain, prayer
Hello all;
Been laying in intolerable pain for 8 days. I got a break for 1 day so I could shower and wash clothes, then next day (yesterday) it was even worse. I started my third batch of antibiotics which are suposed to be the strongest there is (zithromax). I waited here in pain for so long, unable to eat or get a drink, just sipping water with my pills. Morphine didn't even work, so called my Dr. and he told me to go to the E.R. The ambulance came, mom followed in the car. When you go alone to the hospital here, they are very mean and I wish I had a mini recorder on me. There were insults and snyde remarks and trying to start a fight and I could barely think, then when mom was finally allowed in to be with me, they were kind, because there was a witness there, so they dared not say anything. I was so happy that this is the first time in 10 years that they treated me quickly, took my pain seriously, called my family Dr. They decided the antibiotic was the wrong one, it should never be used in dental infections, it can even make the situation worse, and they told me to tell the dentist not to use it anymore. The Dr. said he gave me more painkiller than he had ever given anyone in his career, due to my high pain/drug tolerance and the nature of the pain. Trigeminal neuralgia is enough, it is called the suicide disease, then add on top of that bone pain, infection, skin graft right from area of the nerve, and lupus causing infection, and I was out of my head. He gave me a shot, then some pills to get me through the night until I could see my Dr. today. Called my Dr. today and he was not in the office, so I will see him tomorrow. I had to go bak to the ER today, same routine, the ambulance men were quite rude, and told me "we can't keep treating you!" I was so out of my head in pain that I thought.."If I can't get treatment when I am in this kind of pain, then I understand how people just kill themselves or walk out into traffic. YOU CAN NOT LIVE IN THAT KIND OF PAIN! I was writhing and rolling in pain and sobbing and my nerves were shot after so many days of that pain, so I was extra sensitive to every bump, every sound, light, etc. I could not even sit up for 8 days for more than a minute without almost passing out. The only reason I am able to type now is because of the painkillers which are stronger than morphine.
Tomorrow I will go out of town to my Dr. by laying on the back seat of the car. I hope the new antibiotics kick in soon and help. If they don't, it means the problem is something different than infection. I did feel like I would die, then thought of my husband in such danger, and wondered if one of us might die before we meet, and that this we are supposed to find out more about the visa, and maybe even both of us will die and have to meet in the spirit world. I don't know. Everything seems so dramatic in this pain and with family problems and every other problem, got credit cards used by fraudsters and about 5 other financial problems that must be straightened out. Just too much stress to handle in this condition. Will write more later.
Blessings, Sheila
Posted by Bluebirdy at 19:43 0 comments
Labels: faith, fibromyalgia, lupus, pain, prayer
~~~~~~~~~~~~~~~~~~
Enjoy your extra hour of sleep tomorrow morning. ;o)
~~~~~~~~~~
Time is free,
and it is priceless.
You can't own it,
but you can use it.
You can't keep it,
but you can spend it.
Once you've lost it,
you can never get
it back ...
~*~ Harvey MacKay
Posted by Bluebirdy at 01:50 0 comments
Labels: faith, fibromyalgia, lupus, pain, prayer
** Yesterday and today I have been laying flat, almost impossible to sit up, even with all my strong pain meds. I didn't know a person could stay conscious through this.Why is it that I go unconscious from high or loow blood sugar when my pain level is fine, and I could be using that time to get things done, but then when the pain is so severe that I can't believe a person can bear so much pain, I can't go to sleep even if I intentionally raise my blood sugar? It seems so cruel!
**SOMETHING IRONIC
**I learned something more about my health that indicated that I should have only 3 years to live. I held my head (which felt like it was going to explode), and tried not to laugh. My odds are getting better! Up until yesterday I had up to ONE year to live." ROFL. I plan to keep increasing the amount of years and health! I think Dr. Oz's book about simple ways to heal all our damage and care for ourselves, ways that have been known since the beginning of the human race, and only forgotten/not taught in the past few generations."You: Staying Young" by Dr. Oz. He has a bunch of other books too. I really hate the modern medical system and have been abused by doctors, but Dr. Oz talks more about natural healing, prevention, how the body works naturally, how to help it work at full capacity without drugs, etc. I will probably go through the library to get them. I'm going broke on books, and most libraries will order books for you if they don't have them, either through intra-library loan, or buying it. They are given a budget each year and if they don't spend it all, it gets cut for the next year, so they usually buy the item you want and then you are the first to read it.
**So? We are all going to die, and no one knows when. We could have a fatal accident. The amount of time does not matter. Its HOW you live that matters. Live in the moment. Enjoy things that you are seeing/smelling/touching/learning/hearing now. We all may leave this world within 10 years anyway due to the second coming of the Lord and the resurrection. I think it doesn't matter too much how much time you have left...I have never been afraid of death...but I have wished I had more help with the pain and with daily living needs and isolation. I've learned a lot through this scare of being told my life might be shortened. I am practicing not worrying...I am still working on that one, but the books about "how to live as if you are dying" and "ONE YEAR TO LIVE" AND "Man's search for meaning" really have helped make life make more sense.
**This week my hubby and I will hear from immigration about whether he can come or not, so we are eager to hear about that. I WANT HIM OUT OF THAT WAR/POVERTY ZONE! He is so brave, intelligent, loving, high morals, loves God, he could go so far if he could get out of there.I want to spend whatever time we have left together...and if possible, time after the resurrection also. We will see what God's will is on the matter when we get the letter from immigration. I know we all are too stressed. I hope we can all learn to handle stress and enjoy our lives. I love the saying "Be kind to others; they are hurting and just trying to survive, just like yourself."
Blessings to you all, I pray regularly for all of those who are in my life,
Bluebirdy
Posted by Bluebirdy at 18:38 0 comments
Labels: faith, fibromyalgia, lupus, pain, prayer