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Showing posts with label painfog. Show all posts
Showing posts with label painfog. Show all posts

Sunday, 14 December 2008

Amazing What A Human Can Endure, Isn't It?

Find all sorts of goodies with this slogan and the bottom of the blog at www.butyoudontlooksick.com

What's the saying? No rest for the wicked, or no rest for the weary? I must be both. lol.

Crazy 2 months-unbelievable amount of legal work I had to do, then HUGE work project for US government, then Mom in E.R. with flu/pneumonia, then I got flu, then pneumonia/bronchitis/asthma, then my computer died, losing 10 years of every precious picture and bit of information on it, then second computer breaks, then I develop some problem that feels exactly like I am in labor, end up in the hospital, I get abused, and my mother gets bullied and pulled out of my room by security guards because she told my abusive male nurse that I was in too much pain to change myself, so could he please get a woman nurse if he is not willing to help.


I know already which friends I will be making angry by saying that I am exhausted and a bit discouraged, but sorry if I offend those of you, because what I am going through is VERY tough at the moment. IT WILL get better, but unbearable pain+exhaustion+abuse when I seek help, affects your strength and attitude. Everything is NOT so positive right now. I WANT TO BE UP AND ACCOMPLISHING THINGS AND GETTING READY FOR CHRISTMAS!

This section was written on December 7, just so you can keep track of what has happened in what order in this series of events.


The mystery of the disappearing decade.

I have lost track of time. It has been week after week of one serious occurrence after another. I apologize for the length of this blog. I have shortened it many times, but it's the only way to explain my MUCH TOO ADVENTUROUS last month or two.

It seems as if a few overwhelming events happened before I took Mom to the hospital for the flu a few weeks ago, but I can't remember all of them. I know the Internet service man came to replace my modem and cable wiring for my Internet. A couple of days later, Mom got pneumonia or bronchitis and I got the flu. Then Mom's health cleared up and I got pneumonia/bronchitis and asthma. I was planning on getting a computer repairman to come to the house for about a month because of computer problems, but there were many delays. A complicated project of proofreading I had to do for US gov't, and then me getting sick so I didn't want to pass my illness on to the repairman, so I delayed calling, until my computer had a meltdown.


Well about a week ago, (maybe more, I have lost sense of time), my computer died. It would not even turn on. My brother was good enough to take it into a shop to have it fixed. I had a note on the side of the computer telling the problems I had been having with it, along with a note that said DON'T ERASE ANYTHING WITHOUT MY PERMISSION! I HAVE IMPORTANT GOVERNMENT DOCUMENTS ON HERE, AND ALL MY EMAIL ADDRESSES FROM THE PAST 10 YEARS ON THE DISK IN THE CD ROM. I had 10 years of important information on this computer, and I had saved the most critical information on a disk, which was still in the computer, but the power could not be turned on to get the disk out. The tech took apart the machine and found that the motherboard had burned out, due to the fan breaking. (The fan cools down the parts inside.)

Something had also happened to the hard drive as well, so I LOST ALL INFORMATION! The Tech couldn't get the disk out for days, so I just went into mourning, thinking of all that I had lost.


If any of you have my email address, will you please write to me to I can add you to my address book? Also if you have any old emails from me with email addresses of my friends on them, could you send me those? Unless people write to me, I have lost them all! A few might write to see if I am still alive or not, but I feel like everything I've done from bed on this computer for the past 10 years has just been lost. All my work, friends, writing, all my pictures of my grandchildren, 2 of which I have not even met yet, collections of encouraging inspirational forwards, all my writing, all my journal entries, books that I had saved information about and started to write... all that I have learned from the hardships that I have experiences, encouraging emails from dear friends that I read again and again, all the legal work that was recently sent to the courthouse to get my husband home due to hardship...all gone! I thought one of the reasons I was still on this earth was to write these books. Now everything I saved for them, every thought I had about them is GONE! So I even felt like my life's purpose was lost.

It's good that this happened AFTER I sent the info to the court, but this lawyer loses half of my information over and over, so if she loses it again, I don't have extras to send to her. I think that I am losing hope of being with my husband. Too many things have gone wrong for 5 years of trying to get him here. Not only do we have to get him out of the war zone, as a civilian instead of a military man (but he is working for UK and USA gov't in translations), but also he has to immigrate. One of the things needed for me to sponsor him is that I must be able to take care of him for 10 years in case he can't get a job or in case he gets in an accident or gets sick, and the legal system's stress has made my lupus so severe that I can no longer even care for myself, much less care for someone else. My husband is angry about that, because he WANTS to be here to help care for my family, who are so alone we don't even have a friend or neighbor to help us shovel a sidewalk or take us to the hospital. He wants to care for us. I think I won't be with my husband until after we are resurrected. I have days that I am very hopeful about us, but right now I am losing hope about us. Maybe because I was/am too overwhelmed to think with strength and positivism.


I am so tempted to go back to saving everything possible with pen and paper again, like before I got the computer 10 years ago, and anything electronic that MUST be saved, I will be saving to a removable USB memory stick that has more memory than my whole computer. I will use the computer for keeping in touch with others, and research, and for my writing, and proofreading job, but not for storing information.


Thank the Lord that we had a spare computer in the house that we just paid $150 to get repaired a few days before, so I started to hook it up to the Internet, but got to a certain point where I had to call my ISP (Internet service provider) to get codes and numbers, so I called them, and the technician on the phone started arguing with me, telling me it was impossible for me to have 3 computers in my house that all were connected to the Internet. I asked if I could please talk to someone else because I really don't want to fight, I just want my email working again. He said "OK let's try something else here." He led me from one place to another in my computer, and then told me to delete my drivers! I don't know much about computers, but I know the drivers are what make things work, like the monitor, sound, and everything else. I said, "Erase the drivers? Then how will I run my computer?" He said he wanted to see if those drivers were the reason for not being able to get onto the Internet, then he would help me re-install the drivers from my original disks in a minute. So I did what he said, then he told me to call the shop that the computer had just gone to a few days ago to see if they were able to get it onto the Internet, then call him back. I called the shop; they said they COULD get online. I called back the ISP, and that same technician refused to talk to me! I asked to speak to a supervisor, and told him that one of his employees just told me to delete all my drivers, and that it would cost about $150 to get the computer fixed, and I already had one computer in the shop, and is there any help he could offer me, since it was that employee's fault? He acknowledged that it was the company's fault, and said he would send a computer tech to the house in the morning to re-install everything that was lost. I really appreciated him doing that. So now I had 2 computers break down in 2 days, and was still a bit sick. I was so nerve-worn and physically worn out, and afraid that I would lose most of my friends.


What a blessing I have this blog!! All that is stored online on this blog is safe, and all of my dear friend that I have made through this blog can still find me. If not for this blog, I would have felt like my life just disappeared into thin air.


After a few days of taking the first computer apart, the computer shop got the CD with my info out of the computer, and I got it back, but something happened to that also, so when I tried to transfer the information back onto the spare computer, it tells me "transfer error", so I can't even retrieve the address book and other important business information and pictures from the disk! It will take months to replace every program and retrievable information back onto my computer. This computer has less memory, so I will have to use the memory on the computer for the programs, and save anything else on an external hard drive.


I know that there is a reason for everything, but I am eager to know the reason for this. I know things just happen, but to not even be able to get my information off of the disk I saved it to, that's just strange. Too strange to make sense.


I went into mourning for about 24 hours. The more things I realized that I lost, the harder I would cry. I got myself so upset that I started thinking about not only the things I lost on the computer, but that I had lost my first husband, all of their family that I loved like blood relatives, I lost my children when I had to leave the USA in a hurry, I lost my grandchildren because I have been too sick to get back to meet them, I lost my Dad, one brother is estranged, one sister told me she would never travel with me again to help me go see my daughters because she is scared of my diabetes. She did take me to see one daughter 8 years ago; I got to see both girls for 3 hours and to the younger daughter's wedding. Now she tells me she is going to visit my daughter and go to her Mrs. Idaho pageant that she will not go with me. I need help traveling, so I won't be seeing my daughter in the pageant. So I feel like have lost my sister. I feel like I have lost everything except my Mother. I am so very grateful for living in a peaceful country with no pollution, and for my overflowing basket of blessings, and for having food and shelter, but feel like I've lost everything else. I guess the saying "If you have your health, you have everything" is true, and the converse is true. If you are too sick to even care for yourself, you don't have much of a life.


Through the mess of trying to fix these 2 computers to get back online, my brother who lives locally completely flew off the handle and said some emotionally destroying things, so I thought I had lost him too, and God has some unknown reason for keeping my new husband and I apart, so I was mourning for everyone I had lost. There will be friends who will think I am dead, or think I am just ignoring them, and I hope some will write to me so I can explain what happened, and get their email addresses again.

Another blessing happened though. After my brother's heartbreaking outburst, the next day he brought me a cute toy white monkey holding a red heart pillow with "I love you" on it, as an apology, so I gave him a big hug and was so happy that he apologized and made up with me. With his mental illness, he's very much a "scrooge" (incurable negative grouch) and so I didn't expect him to ever get over his anger. Because of lots of prayer, and a soft hard under a hard exterior, he did. He felt sad for making me upset.

It took 5 repairmen to get me back online, working on 2 computers. It's also a blessing that we had a spare computer so I didn't have to wait to buy a new one. After the ISP technician left, my brother decided he would help by taking the RAM (memory card) from my first broken computer and put it into this second computer. He opened it up, put in the ram, then when he closed it up, a part from the back of the computer fell out, and I was no longer able to get online again! This made it the 4th time that things were done to cause the computer to not be able to get online! I didn't plan on telling him about the problem, because his first abusive outburst to me happened when I was telling him that he didn't have to worry about fixing my computer, because that a technician was being sent over to do it for free, and he yelled and screamed that he had to do it himself, and that's his curse in life and it never ends and on and on, and I told him I was trying to make this easier for him, and he told me he was trying to make things easier for me, and we fought about it. So there is no way that I could tell him that he broke my computer again, or there was no telling what he would do in his mental illness-scrooge-state of mind. I didn't know whom I would get to help me this time. I don't have the strength to carry the computer to a shop to fix it and I felt too sick to get a technician to come sit in my bedroom while I was sick in bed, so I just thought I would do without for a week or so. A couple of days later, my brother came over and asked why I was not on the commuter, because usually the computer is on 24/7. I just told him I was in too much pain right now, but he said "That never stopped you before, isn't it working?" I said, "I'm not sure, when I feel better I will test it and see." He came over and saw the part in the back of the computer that had fallen out, swore, tore all the wires off, walked out of the room with the computer, yelling about this being his curse in life and he wishes he could never see another computer as long as he lives and why is God doing this to him etc. etc. and he fixed it in just a couple of minutes, and brought it back in, turned it on, and it got online! I told him thanks a million and I really appreciate all that he has done but to please turn it off because I can't even bear the light or sound right now. So after a few hours when the pain eased up, I was happily, finally online again!


I was surprised that I cried so hard when I lost all of this info, and I really worked myself into a bad emotional place. I just had too much stress all at once and not enough energy to deal with it all. I am still trying to recover from the pneumonia/ bronchitis/ asthma, which has caused other complications with diabetes and lupus, then I had 4 MAJOR confrontations while trying to get my computer back online, 2 with family and 2 with the Internet company. I was sensitive due to the anniversaries of Dad's death, of my parents marriage, my first marriage, my new marriage, (all within days) and started wondering why God wanted me so very isolated and alone despite how sick I am, and how much help I needed. I started thinking of how Mom is the only human being I talk face to face with and can hug, and what will I do when she dies? I'm so glad we are so close and love each other so much. I started feeling so useless and hopeless and I hope someday to understand why God wants me to be so very alone (physically) through all of these trials. I know that was just Satan working on me when I was already down, and it passed soon. Our Redeemer IS there to comfort us, and He does, whenever we ask. He helped me remember many comforting scriptures, which calmed me down, such as "Worry not for tomorrow, for tomorrow will bring troubles of its own." And "He will supply all your needs" and "I will never leave nor forsake you" and many more. He is more powerful than Satan, and can send Satan away. I am blessed to have the emotional support of my Internet friends, and it helps A LOT, but no one can get through life alone. We all need the help of other people physically, and I hope the Lord will soon help in that area. I was ashamed of my "falling apart", but I guess everyone gets overwhelmed sometimes.

It does feel like I lost my mind, because everything that is in my mind was in that computer. My daily chores, weekly, monthly, my budget, the bills I have to pay, gift lists for all year long for birthdays and Christmas, grocery list, and due to my bad memory from illness, I have to write down everything. If I don't write down to brush my teeth, even that sometimes doesn't get done.

I have no right to complain, really. All of these problems are nothing compared to the torment of war that my husband is living every day, and the hardships of most people in these last days. I was ashamed of my negative feelings, but those are only human. Well I am thankful to be online so soon. It could have been worse. My sister is traveling here tomorrow in bad weather, so I am praying for her safety. She says she will help me get my Christmas boxes to the post office. I should go get her family's gifts wrapped and do some decorating before she gets here. It feels good to be in touch with you again. To you, it was just a couple of days since you heard from me, but to me, it felt like a traumatic month or so.
Blessings, All!
Bluebirdy


Written Dec 10/08
THE GIFTS THAT SCARED PEOPLE TO DEATH
This is just the latest of my husband's experiences there in the middle of the town that the Taliban are attacking. Yesterday is EID, which is the Muslim equivalent of Christmas. They have Eid in the Himalayan Mtns where my hubby is. It is the day that Abraham took his son to a mountain to offer him as a sacrifice, and then God stopped him before he actually did it. The Muslims slaughter an animal such as a goat or cow, and have a feast with the meat and exchange gifts. The houses in the area where my husband is, is like the times of Jesus. Each house is built in a square, with the rooms along the outside walls, then an empty courtyard in the center. There is a door from each of the rooms to the center courtyard, and there are steps up to the roof of the house. If anyone remembers the story in the Bible of the house where Jesus went to preach, and there was a very sick man laying on a stretcher, and he was lowered from the roof into the house where Jesus was preaching, well I could not picture how a person could be lowered into a house from the roof until I saw pictures of these houses with the courtyard.

Anyway, in the morning, they heard a huge helicopter, called a war-ship, getting closer and closer. It has 2 ends so it can fly backwards or frontwards, and they can shoot from the helicopter from both ends. It was getting so low and so loud it was scaring people, so everyone on the street where the houses are where my husband is, came out of their house into their courtyard. It was so close, they thought the people in the plane were going to start shooting into the houses or land on one of the roofs or something. The young wife next door to my husband fainted, and the heart specialist in the house on the other side of my husband's also passed out. They threw something out of the warship, and an elderly lady yelled, "IT'S A GRENADE! RUN!" She ran. When my husband looked closer, it was flat folded up cloth in plastic. They had thrown out about 5 in the courtyard of each house. They were shawls, (head coverings/hijabs), pretty ones, as EID gifts!

My husband has medical experience, and a few seconds later someone was at the door asking him to come next door to check the heart specialist who had passed out because he was not waking up. My husband went there, check the heartbeat etc. and his heart rate was dangerously slow, so he got the sons of the house to get the father to the hospital immediately. Then he called me to tell me what had just happened, and while we talked, another phone rang, and when he answered it, he was told that his neighbor had just passed away.

I want my husband to write a story to the newspaper, using an anonymous name if necessary to protect his safety, to tell what happened and to tell whoever gave those gifts that it was not such a good idea, and he wonders how many other people fainted or had heart attacks from that "gift giving" excursion.

About every 3 days now he has a very close encounter with death, even though he is working there as a civilian translator, not a soldier in combat. Last week there was a Taliban yelling at a woman who only had a shawl on her head instead of wearing a bursa that covers you from head to toe. My husband risked his life and went to the Taliban man and said "excuse me, but if you will have mercy on her, I am sure she will not make the same mistake again. Will you let her go just this once?" The Taliban man asked the woman if she will wear a burqa next time and she said yes. Then the Taliban guy told my husband "You know, if you grow a full beard it would be much better for you." He said this because this month, laws were made that women must wear burqas head to toe and women must not work in public anymore unless it is in medical care, and men wearing no beard can be imprisoned for 60 days, and partial beard can be imprisoned for 30 days. My husband has a baby face. He can only grow a partial beard, so he could have been taken prisoner right then, but my husband said "I am really trying, sir. My beard has never been very heavy. I know I should have a beard, and that woman knows she should have a burqa, but these rules are very new to us." The Taliban said "Would you like to sit and have tea with me?" My husband said "No thankyou, I need to get my marketing done, but thank you for being so kind." So now my husband hopes that one man stays guard on that corner, because he has made friends with him and will be safe as he goes to and from market with only part of a beard. Another Taliban man might not be so merciful. It's so sad. This valley is called SWAT; it is halfway between Afghanistan and China on the Kashmir border. It is the "Shangri-la" of the oriental traditional stories, a heavenly valley now overtaken by the Taliban because they want it for their own headquarters. A heavenly, peaceful mountain valley, away from civilization, has now been turned into a valley of torment and war. I have almost given up hope that my husband and I will ever be together until the resurrection. We are really stuck in a touch situation. We love each other too much to split up and be with anyone else, and there's no way we could stop thinking about each other, yet we can't be together either. Star-crossed lovers, maybe?





Written Dec. 13
Just moments after my sister left from her visit, I ended up on the floor, writhing in pain, in more pain than I knew a human being could endure. I was taken to the hospital, and abused so badly, and even my mother was abused so badly when she came to be with me, that I had to write a letter to the hospital administration, and if I don't get any action from them, I will take the case to the newspapers and to the higher medical boards in the province. I have HAD IT with this medical abuse when I am too sick to even defend myself! I was literally SCREAMING in pain and couldn't control it, and could not move on my own or think, and could talk only between screams and breaths, 1 word at a time...and when I needed help the most, I was insulted, neglected and my mother was taken out of the E.R. by security guards! Rather than try to write the whole incident again, I am going to post here the letter I wrote to the Hospital Administration. If this abusive male nurse dies not get disciplined from administration, I will take the case higher. I have changed some of the words for this blog, in case some of you are sensitive to terms of human functions. I made it more technical for the hospital administrator.


Dear Administrator;
I had an experience in the E.R. that I need to let you know about. I am upset enough that I am considering going to the newspaper and perhaps some higher authorities unless you can help me discipline the male nurse that was responsible.
On Thursday, Dec. 11, it was the second day that when I had to use the washroom, my whole torso would create one huge muscle spasm/contraction, like it felt when my body was being squeezed while giving birth. I had no clue what could cause that, but it would last for at least half an hour. It was just as intense as giving birth. I have had kidney stones, lupus nephritis kidney attacks, and other severe pain that I live with regularly, but NOTHING compared to this. I wondered if I was giving birth to a kidney or something! Friday afternoon, it was not going away as it had each time previously, and whatever was happening to me was squeezing me so hard that I fell to the floor and it was squeezing air out of me and through my throat, making me scream, and I couldn't control it. By then the pain had localized to right high kidney area and radiated down to my bladder area, and it was worse than any pain I had ever experienced.
I live with my mother, and in between these spasms and breaths, I yelled for her to call 911. The paramedics got here, but my house is built in a way that there's no way to get the gurney/stretcher into the house, so they lifted me up from under my armpits and were pretty much carrying me out, helping scoot my feet ahead at the same time.
When I got to the hospital and they helped me roll onto the hospital bed, I was still yelling and so terribly embarrassed about it! I have to deal with a lot of pain DAILY, with lupus and trigeminal neuralgia and fibromyalgia, but I have been very strong and silent about it. I avoid the E.R. until I think I might die, because in my experience of living in Lethbridge 11 years, I have found that if you go to the E.R. alone, you are insulted, abused, neglected, under-treated, but as soon as you take someone with you to be a "witness" or advocate, the things that the staff would say to me WITHOUT a witness/advocate, just don't happen.
I think I passed out from the pain once I got on the bed, and was awakened by a male nurse saying "Sheila, take off your shirt and put on this gown." He THREW the gown at me. I said in between breaths/spasms..."I can't move." He said, "The paramedics told me you got up and walked to the ambulance yourself, so don't give me that, and your screaming is completely unnecessary and you can stop that right now."
If I would have had a pillow, I would have put it over my face to muffle my screaming. He said "Well I am NOT going to change you, and you won't be seen by a Dr. until you change your clothes, so get to it." I tried for about half an hour, and he came back and asked what was my problem, why wasn't I changed, and I said I needed help. At that moment my Mother walked in. She is pretty much bedridden. She only came out of the house to be with me at the hospital. She heard the male nurse say, "You won't be seen until you change your clothes so you might was well get at it." Mom said, "She can't move! She needs help. She's been screaming in pain! If you don't want to help her, why don't you get a female nurse to help change her?" He pointed his finger in my Mom's face and said, "YOU sit DOWN! You are making her THINK she can't do it! She walked to the ambulance! She can change her clothes!" Mom started to describe that I did not walk alone, and the male nurse left and got the security guards, and told Mom to leave. Mom said, "I don't want to! She needs someone with her!" The male nurse said, "Are you going to leave alone or do these security guards carry you out?" Mom said, "I have a right to stay with my daughter!" So the male nurse had the security guards grab my 75-year-old frail mother who has multiple SERIOUS illnesses and haul her away. I didn't know if she might have a stroke or heart attack from that treatment, I didn't know if she was going to jail or going to be locked into a room or be sent out to her car or what was going on, and that made the pain even worse, so I was trying to cover my mouth with my hands to make the screaming and crying stop. I didn't know there WAS pain like this. I was thinking I was going to give birth to a kidney or that something inside me had torn apart or something. Now I was so afraid for my frail Mother, and also very afraid for myself because now I had no advocate, and this cruel nurse could pretty much treat me however he wanted, and it looked like he was going to make me suffer a lot during the worst pain I had ever experienced in my life!! I was SCARED, and now shaking, moaning, crying, and pushing like I was in labor, and pushing on my kidney with my fist as hard as possible because it seemed to help.
A female nurse came in and asked me to explain what I was feeling. In between these contractions or "squeezing attacks", I said "Like pushing out a baby, plus burning kidney pain, going from back to front." She left, and cam back with the male nurse, who said "If we raise you up, can you help us take off your shirt?" I nodded "yes". They raised me up, pulled off my shirt and put on the gown. Then the male nurse said, "See? You could have done that!" I said "No, way." Then he started trying to get an IV into me. He tried 10 times I think, from the marks on my arms, hands and even fingers, and he said "Has anyone ever told you that you need to lose weight?" This man was as fat as I was, but I didn't dare tell him he also needed to lose weight; or for sure he would have tortured me, so I said "It's tough when you have my diseases to lose weight." He said, "Well you're too big to find a vein!" Through my pushing--I said "Did anyone tell you that you need to learn some compassion, and people couldn't find my veins even when I was thin!" I'm not sure if there was 1 male nurse, or 2 that alternated coming in, because I couldn't see clearly due to the tears. I am just grateful for the female nurse that knows that when you are pushing out a baby, you can't move or think or do anything but push and moan.
They got some pain medicine into me, then helped me get to the bathroom for a specimen, and while in there, the attack started again, so I took paper towels to cover my mouth as I screamed because it echoed so much. After half an hour in there, a female nurse knocked on the door to see if I was ok, I said no. She opened the door, and said "why?" I couldn't even talk. I was doing the Lamaze breathing technique used when I had my children. She asked if I needed help to stand up. I nodded my head yes, so he helped me up and pulled up my pants and helped me back to bed.
When the urinalysis came back, Dr. Barsky came to tell me that I had a "little" infection and that he was going to start an antibiotic IV drip. I asked how a "little" infection could hurt more than any kidney stone or lupus nephritis attack I ever had, or even more than another painful condition I have, trigeminal neuralgia, which is also called the suicide disease due to its severity, the Dr. walked away. When the nurse returned with the antibiotic, I asked her the same question. She explained that if your kidneys have any damage, kidney pain can be worse, and maybe it was not a "little" bit of infection, maybe it was more severe than that.
I have also got arrhythmia, and I have had instances where my trigeminal neuralgia pain has made my heart stop. That day I was wishing it would make my heart stop again. I just wanted to die if I would not be getting any help until I could change my own clothes, because I could NOT change my clothes, so I would be there forever in that pain.
I have stayed at home through very serious pain, too serious for me to even get out the door to the ambulance, so I just stayed in bed and fought through the pain myself. Some days I thought my heart would stop and had chest and arm pain, but I knew I had no one to go with me to be my advocate, so I was actually safer to stay at home than to go to the hospital when I was too sick to defend myself.
I don't know what that male nurse was thinking, but I don't EVER want that to happen to another person again! I would appreciate if you would locate the male nurse that was assigned to me. I think his name was Brent or Bruce, and I would appreciate knowing SOON if any action has been taken in regards to him. If I don't hear from you within about 10 days of when you should have gotten this letter, I will be going to higher sources.
There are signs all over the E.R. saying, "This is a harassment/abuse free zone." For the first 3 E.R. appointments our family had after those signs went up, they were the best E.R. visits we had EVER had, so we thought something at the hospital had changed. Maybe the staff had been retrained and rules had been changed, but now I don't know if anything has changed.
My mother and I are seriously ill. I inherited her lupus, which affects all different organs at different times. We are seemingly punished for needing medical care. We bear a LOT of pain at home, and don't come to the hospital until we absolutely can't bear it and we think the incident might kill us, and then it seems we are treated badly as if to discourage us from coming back again.
Medical abuse causes a lot of problems, just as if a husband that she can't divorce is abusing a woman repeatedly. We cannot divorce our illness. We will continue to need emergency care. We try to avoid it, but there are times that we can't, and then the experience is a nightmare because we fear what kind of abuse/neglect we will face when we can barest even speak to remember the questions they ask us or defend ourselves. I can see why some people commit suicide or let themselves die by staying home---when they are faced with the fear of abuse again and again when seeking help. It gets to the point where you cannot face the abuse, combined with the medical crisis, one more time. We have nightmares again and again about being tortured when we need help in the E.R. We can't move away from Lethbridge. I think we show amazing courage to even come back to the E.R. when we KNOW we will be insulted and abused along with what else we are dealing with, but I beg of you to help this abuse stop, by taking one step against one male nurse that had no right to say or do what he did to me and my mother.
I kindly ask you for compassion and assistance in this matter, as life is getting increasingly hard to survive when we are being "punished" for having health problems.
Kind regards and with appreciation,
(my name here)


So how am I now? I continue to have these attacks every few hours that feel as if I am giving birth. I could have pushed out 25 babies by now if I had one baby with each attack. I would have rather done that than to get nothing out of it, because then I could give each child to someone who desperately wants a child. Today is Sunday so I can't get any clinic to help, but I called a nurse hotline that helps with medical questions, and that nurse thinks both my kidney and bowel that is touching my kidney could be infected. I REFUSE to go back to the hospital, so I hold a towel over my mouth as I scream through the attacks. Tomorrow I will call my Dr. and tell her what has been happening and ask if I can be treated at home rather than go back to be neglected and abused at the hospital. I am exhausted after what seems like going through labor every 2 hours. I am discouraged because of the pain and exhaustion. This too shall pass, but at this moment, it doesn't feel like it will pass. With this much pain, there is no "living". I am not eating at all, so because of my diabetes, my Dr. will have to get me treatment tomorrow, either at home or admit me to the hospital. Lupus is such a crazy insane disease! It attacks different parts of the body each day, and I didn't even have a fever with this, because lupus was so busy attacking my body that it did not fight the infection, so the infection continued to grow out of control. I'm sure I wore you all out...but I have no one on earth to talk to about this DRAMATIC life...so I blog it. I need your prayers that these attacks will stop. They are inhuman...TORTURE! Then to get abused when I seek help...I almost want to give up.
Bless you my dear patient friends!
Bluebirdy








Blessings:

1) The Lord helped me get my dozens of Christmas gifts wrapped and in the mail on time!

2) Mom did not suffer any ill effects physically or emotionally from the security guards

3) I am back online because we had a spare computer.

4) The Lord is with me, comforting me. HOW DO PEOPLE LIVE WITHOUT THE LORD IN THEIR LIFE???

Thursday, 24 January 2008

NEW HOPE IN LUPUS RESEARCH FOUND

Two articles that might give you some hope.
http://www.news-medical.net/?id=33556

AND

http://story.100.com/?rid=12314224&cat=a1e025da3c02ca7c
Maybe there will be a cure in my lifetime yet, if they are finding the damaged gene (#13 by the way), and now finding a mutated gene that stops lupus! I am PAST ready....and waiting for a cure or a kind Dr. who will help with treatment, or for a release from this prison of a body! Sorry to not sound so upbeat and positive, but intense pain and weakness saps the ability to reason clearly or think positively. If I had someone around to help me change my thoughts, it would be great, but I don't...so I just keep praying.
Blessings,
Bluebirdy

Friday, 31 August 2007

Back to the Beginning





Readers: Forgive me if things are repeated. This oxygen makes me an airhead. lol. Also fibro causes a REAL, scientifically proven problem called fibro fog, and pain and medication cause painfog. A lot of these posts are from letters that I wrote to others, so I tell more than one person the same thing, so it will be repeated.

July 30/07 (Day I found out I might not live a year)
Finally got into the heart Dr. today. I waited 6 weeks for this. When I first went to see my family Dr. 6 weeks ago, he said it was quite serious and wanted to admit me but he doesn't have hospital privileges. He called this Dr. to see if he would admit me. He said no, not until he sees me in an appointment in 6 weeks. He said "I am telling you I have a young woman here who could die at any moment and you are telling me she has to wait 6 weeks? What if she goes to the E.R.?" The heart Dr said they would stabilize me and send me home but still HE wouldn't see me until the 6 week appointment. He didn't even tell my family Dr. that HE doesn't have hospital privileges either! Now I am being referred to a heart Dr. WITH hospital privileges which will take 8 more weeks. If my family Dr. would have known this first heart specialist didn't have hospital privileges, he would have sought out one WITH hospital privileges to begin with! Now I will be wasting 8 more weeks! This heart Dr. said if this amount of heart damage continues every 6 weeks, I might not make it until treatment, because in Canada it could take 6 to 12 months! In the USA you can get treatment within 24 hours of finding out you need it.
So many doctors will not deal with the local hospital! THEY ARE DISGUSTED by the politics that go on there. I have seen many leave town, GOOD ONES, and others just do not deal with the hospital at all, just home care. Anyway, 6 weeks ago my EKG looked almost normal. Yesterday's EKG showed "a significant amount of damage to happen in just 6 weeks". He wants me to have another test to see if angioplasty would be any help, but that will take another 8 weeks, and if I have the same amount of heart damage in the next 6 weeks as I have had in the last 6 weeks, I will be even closer to dying. Then if I AM edible for angioplasty, I will have to wait 6 months or more. By then my heart will be too damaged to do the surgery. So I am dying because of Canada health care delay??? Makes me want to go to another country to get this test and treatment.
The biggest new travel industry is medical tourism. Its hugely popular to go to other countries for state of the art medical care, which is much cheaper and faster and they put you up in a 5 star hotel with doctors on staff at the hotel, to heal for $25 a day!
I don't know whether to ask our politician to hurry my husband's immigration so I can get well, because I do think I will get healthier if he is here, or to just leave it as it is and I will get worse. I don't want him to come here if he will just end up being a widower. I don't want to put anyone through the hell of living with a dying wife in a strange country where he couldn't even get his meals taken care of.
I am working full time calling agency after agency trying to find someone to talk to, and getting passed around and put on hold and told they won't talk to me, which is just making me more and more frustrated every time I pick up the phone.
Why does God want me to be so alone? Yes, HE is with me, but at a time like this, we need a human being to talk to and more than one to help my family with day to day living.
On the first day that I spent so many hours trying to call agencies and getting pushed away by them all, it just reinforced the idea that for some reason God wants me to do this completely alone. Even the distress line put me on hold (sounds like a skit from a Saturday Night Live Skit, doesn't it?lol) and an agency that advertises that they are there to refer people to other agencies that could help them, and their motto is "THAT'S WHAT WE DO"...said they had no idea where to refer me, that she was closing up in 15 minutes and didn't want to turn her computer back on, and other excuses, and I called the hospice. I asked if there was a counselor there or someone I could talk to after just hearing this news. They told me I could not even talk to them until I got a referral from my Dr, but that the Dr won't refer me until he is SURE I only have 6 months left, and if I live past that 6 month time, I am taken off the program, no matter how sick I am, and put at the bottom of the waiting list again, so they don't refer people unless they are ABSOLUTELY sure it is shorter than 6 months so the people don't have to go through the hell of being removed from the program while they are at their worst. I don't think I will even be referred there, because as some here said, doctors can't give a specific time line. That is up to God to decide. I have had my heart stop many times, but they resuscitated me and I'm still here! I was able to find an online hospice support group yesterday, and so far they are very kind, but they are all hospice workers, or family members of people who died, none in there who went through this themselves. If I could live longer I'd write a book for people who have just been told they are dying. There is obviously nothing out there for us now. Someone suggested to make lists, like a list of things people could help me with, a list of things I WANT to do if I get the strength and money, a list of things that need to be done, but its overwhelming because I barely have the strength to think of the lists, and certainly don't have the strength to do all the things on the lists. One friend suggested to just write my will and maybe plan my funeral and then just relax and enjoy life. Everything I own (it all fits into one room) can be sold to someone who buys estates. So many things that were on my "to do " list last week, I look at now, and think "if I'm not going to be here, why bother with that? If I have limited time and energy, I want to use it on things that I want." I am a newlywed and was in the process of getting all my cards changed over to my married name, but now wonder if the hassle is worth it. My husband is overseas waiting for immigration and it has been delayed time and time again. now I see why. It would be horribly miserable if he came to a new country to live with a dying woman and could not even get 3 meals a day because he doesn't cook and neither can I at the moment. hmmm...I think I am repeating myself. Forgive me if that's the case. Too many thoughts swimming in my head all at once. I have even thought of trying to get a loan to do something I have always wanted to do, or even to go to another country to get FASTER treatment so that I might live! I am not well enough to travel, and it will take so long for me to get a passport, that I don't know if that is practical. Just thinking of every possible option. Now if I had money, someone to help me get to another place, and a bit more energy, I would have a bit of fun before I go! I thought of selling almost everything I own so I could do that, but at the moment I don't even have the strength for a garage sale or to take all my items to the local place that sells it on ebay. I sold on ebay by myself for a year, but didn't have the strength for the picture taking, documenting, taking 20 boxes to the post office every week, dealing with honry customers, etc. Oh well, I have faith. I have HOPE. HOPE is the only thing that keeps us sane and keeps us going...so I have to hope that some people will be sent to help me. In our house with 4 terminally ill people, we tried for 10 years to get home care, but were always turned down because unless we need someone to feed us, or bath us, or give us meds, we don't get help. I don't need any of that...and if that's all they offer, why have them come?

Aug 11/07

Ha! I won a nice 2 disk CD today! So this week I won 2 hamburgers, $10, a pop and a CD. I think I'd better buy a ticket of some kind for something big, since I'm on a roll! Maybe one of those tickets that the money goes towards helping charity, and the raffle prize is a car or house or something. lol. Are raffles gambling? Wow isn't it awesome how sometimes God drops little gifts from heaven to make up for the hard times? Sometimes material, but more often spiritual or emotional, in the way of friends who say just the right thing at the right time, or you flip open the Bible to the verse that you needed right then, or are led to read a certain book that helps you get through another day...God is good.
About an hour ago we had a real faith promoting experience that I will put into my journal.
First, some background that led up to the experience. I live with mom, who has been semi-conscious since I got home from the Dr. and told her only part of the news, but she put 2 and 2 together, and the stress caused her blood sugar to raise so high that she went into a really deep sleep, one step before diabetic coma. Also right when I got home from the doc, an email was waiting for me telling me that a friends 18 day old baby just died...so my head was just spinning with dealing with my own bad news, the friend's baby, and trying to decide whether to call 911 for mom or not. I didn't know whether she had accidentally taken too much medicine, and that's why she was so unresponsive, or if it was high blood sugar, or some other reason. I prayed about it and got a calm feeling that she would be ok if I just kept trying to wake her and as long as she could respond and I could keep getting fluids into her, she would be ok. It happens quite often to me also, but I don't have anyone to check on me or to help me the way I was able to help mom. Anyway for all Monday afternoon, all Tuesday, and Wednesday most of the day,she was in this sleep.
I should not have told her anything about the Dr. appointment I guess. Then she would not have stressed out so much that her blood sugar raised so high. Anyway, without telling me, Mom got up out of her semi-conscious stupor, gets dressed, gets in the car (she should not have been driving) and went and got groceries...more than I have seen her get in about 6 months. That was another sign that she was still not quite thinking clearly. We have this folding cart with wheels on it to carry groceries from the car to the house, and she put some in there, and came to the house, and I lifted the cart up all the stairs to the kitchen, (which I shouldn't have, I paid for that physically)... then she went back out for load #2. I was unpacking groceries in the kitchen, and heard a crash. I looked outside and mom had fallen down the stairs with the cart on top of her. I ran out and pulled off all the groceries and tried to pull her up. Half of her was hanging off the edge of the stairs. AT THAT VERY MOMENT....GOD'S PERFECT TIMING...my brother came to the house, ran to us and helped me lift mom up and see if she had a broken hip or shoulder or whatever. Dad was just put into a nursing home last March, which has completely turned our lives upside down, and now thoughts of mom being in a nursing home was running through our minds too. I got mom settled down and examined while my brother put away the groceries for the first time in years, and when we determined she just had a scrape and a bruise, we thanked the Lord that it was not worse, and we realized that it was a very visual sign that the Lord was protecting us! By then, my heart was going a mile a minute and causing pain , so I collapsed on my bed, and again, perfect timing, my husband from overseas called me! its 3:45 in the morning for him. It felt good to know that we still have that kind of connection. So I told him what happened and that it was a sign that God was watching out for all of us, etc. and he was very happy that he could hear the whispering of the Holy Spirit loud enough to obey and call me at that perfect moment. I love the Lord's perfect timing!!!
What is even a greater blessing, is that my brother, who has suicidal depression, and he was attacked by a dog 2 weeks ago, and 2 days ago really spilled his guts about how frustrated he is with religion etc, just called me tonight he told me that he KNOWS that was PERFECT timing and the fact that Mom didn't get hurt absolutely is a visible sign of God protecting us! She's 75 years old and has many illnesses and osteoporosis and that fall should have broken a hip and a shoulder!
I pray and pray and pray to know what to say to my brother or what to do to help him see life differently, then today I prayed, saying that I don't know what to say or do, and asked that the Lord would do something, point him in the direction of things he could read, or something people say to him, to let the light bulb go on and help him start thinking better, to have a better life, and this seemed a bit dramatic, but it was needed, something to shock him, something VERY obvious that God is protecting us. I hope he remembers this visible sign that God is protecting us. It was a valuable lesson for Mom and I too, at this time when our family's lives seem to be such a delicate balancing act, it was reassuring to see the Lord in action, protecting us.
Just thought it would be good to share a good experience with you for a change.
Blessings, Bluebirdy

Aug 20/07
I found thousands of books and websites about grieving for someone who is dying or has passed away, but NOTHING about people who have been told they are dying. I also found that people dying of Cancer are very pampered by the medical system and by society in general, but if you are dying with any other disease, you are pretty much on your own, even though we go through all the same things as those people with cancer. With cancer, there is a chance to recover. People with other diseases, by the time they have been told they are going to die, probably will not recover, yet they are not taken care of like Cancer victims are. I am happy that Cancer victims get that type of care, but I am hoping that the medical world will wake up and realize that people dying of other diseases need the same type of care, hospice, pain control, counseling, clubs and groups of family members trying to deal with it, etc.
I am a very private person. I have not even told my family that I have been told that I could die. I write in a journal, but never thought of a blog. I hope I live long enough to write a book about dying from the dying person’s perspective. Its sure needed. I don’t even pray out loud, for fear that any negative spirits around might hear it and might arrange things to look like the answer is from God, but really it turns out the answer is from the wrong source…and I am desperately scared of doing this, because I don’t have the strength to handle people’s rude or insulting comments, and once you go public, you will get that, because there are all kinds of people out there.

I am so grateful for the internet. I have a cartoon .jpg I wish I could put here of a man hugging his computer that says “I love my computer, all my friends live in it!” That’s my lifeline to the outside world.

The day I discovered how Oxygen helps:
I got so desperate with this heart failure that I used my mom's oxygen, and the difference was like night and day! The muscle spasms went away, the fibrofog went away, the sweating so bad that I looked like I was in the rain went away, the ability to stand and walk went from 10 seconds to about 5 minutes! It reminds me that we must have opposition in all things. Darkness and light; hot and cold; happy and sad; healthy and sick; because how can we appreciate the good without experiencing the bad, and how can we discern something that might be bad or untrue or dark without experiencing the light, the truth, the peace of the information from the right source?

Aug 21/07

I was feeling alone for the first time in my life. I actually enjoyed my solitude because of the pain and weakness, then getting the horrible news, all of a sudden I didn't want to be alone anymore, but I have kind of liked my solitude up to that point.
The Lord has been doing things to make my life better, little blessings here and there to show me that He knows my problems and He cares and He is with me.
All my life I have had lupus and fibro, which makes you seldom get positive medical tests, so you get told you should go home and leave the doctors alone, because its just stress or that you are neurotic or seeking attention or a list of whatever they can insult us with because something doesn't show up on a test. It seems weird to be happy that something shows up, but it means that I will be given some treatment, and that there might be something they can do for me. With lupus, chronic fatigue, fibro, and various other diseases that they don't know much about yet, we don't have those comforts. I was actually happy when I developed another health problem about 12 years ago that required stronger pain medicine, because that pain medicine could help with the lupus pain, too, so its weird to think of a painful condition as a blessing.
Though my heart test not showing good news is not a good thing, it IS a blessing to actually get looked at with respect and treated kindly because something actually does show up as being wrong. My Dr. last week told me to go to the E.R. to get my blood oxygen tested when I was having a hard time with sweating and inability to breathe and muscle spasms and not able to think and chest pain, so I was ready to go yesterday, but thought I would call my Dr. first to ask a question about it. The nurse said "You can't get a prescription for oxygen from the E.R! First you have to make another appointment with the Dr...he's not available for 3 weeks, then he has to order a special 24 hour oxygen test, which will take another 3 weeks, then you have to wait for the results which will take another week." I said "I have been in there 3 times already about this! It takes everything I've got to get in there! I don't have any help, and why didn't he order this test the last 3 times? It seems your office really likes the $46 fee for each appointment, so you deliberately put off something I need so I have to come back!" I never talked like that to a nurse before but I was in pain, I could not breathe well, I was ready for the E.R., and now she was telling me that I would be flat in bed unable to breathe or even get myself something to eat for another 7 weeks?
I called the oxygen company to re-order Mom's oxygen, because I had used it all, and asked them if there wasn't an easier way to get oxygen. He told me that he would set up a blood test for Tuesday and I would get the results immediately and get the oxygen the same day. So, there ARE ways to get things done faster in Canada, you just have to know the right people, or bribe the right people, or be someone famous, or something! So now I am going to pray to find someone who can get my 6-8 hour cardiolite test done before 6 weeks, and if it shows I need angioplasty, some way to get that done ASAP instead of the 6 months to a year that I was warned about. In the USA they do angioplasty 24 hours after the test shows that you need it. In fact in most developed countries they do it that way, but not Canada.
So, for those that don't know, 100% oxygen is what we should have in our blood. If you get down to 90% is when they give you oxygen. They took the first test, and it was 77%. The nurse took it into the other room and the supervisor said "That can't be right or she would be unconscious." They took it again, and it was 86%, so I qualify for oxygen. I got it brought to my house. Now I can get back into life, and it sounds weird to be thankful to be up for 5 minutes at a time, but I can clean, 5 minutes at a time, then rest in between. I can cook, 5 minutes at a time, go for walks, resting every 5 minutes on the walker or my seat cane, so shopping for the first time in 8 years or so, go to the park...boohoo. So this energy is what I have been missing? This is what "normal" people feel like ? Now I feel this energy but still not allowed to do a lot of activity until the heart surgery because after only 10 steps my heart rate was 145...but now I have HOPE! I don't think the Dr. is right about me dying in 1 year. Only God decides that, and I am not finished what I came here to do and to learn. I want to enjoy life before I go. I never got much of a chance to enjoy it yet. What little blessings I do get, I am grateful for, but I want to have more experiences and do more in life.
How ironic that when things get worse, they can seem better, because you appreciate the small things more, and every little blessing is a JOY! Every little improvement in health makes you appreciate what you have because you did not have that much health earlier.
Being grateful seems to bring more and more blessings. Maybe because so few remember to thank the Lord for anything.
Blessings, Bluebirdy

My living circumstances
I am 47, RE-married, but my husband is still trying to immigrate. My children are grown and married with kids but I have only seen them and my grandchildren for 3 hours in 10 years. I live with my mom who is also in the last stages of lupus. My father lived with us until March when he could no longer stand so he is in a nursing home. We could take care of him despite the Alzheimer's, heart failure, diabetes and cancer until he could no longer stand. Now we have to go feed him twice a day. Mom and I are too sick, so my sick brother who has Parkinson's disease takes care of him. He lived with us and cooked every night until Dad went to the nursing home, then he got an apartment of his own and feeding Dad is all he has strength for each day, so none of us is eating well. Just 4 months ago I got so weak that I can't stand for more than 10 seconds to even make a sandwich or a meal, so we are living on things you can grab, like cereal, ensure nutrition drink, yogurt, pudding, fruit. I get a few dollars from disability but not enough to live on my own. I was able to earn more a few months ago by doing freelance proofreading online and worked with my husband’s translation company. I have not been well enough to do that for months.

HOSPICE IS NO HELPAs for hospice...seems like cancer victims get pampered,especially if a Dr. can give an estimated time left,like 1 year orwhatever. Listen to the rules of my local hospice and see if itseems weird. My doctor MUST certify that I have less than 6 months.He says he can't do that, because only God knows when I will go, noperson does. Until I get a "time" of 6 months, they won't even talkto me on the phone. When you are enrolled, if you live longer thanthe 6 months, you will be taken off the program. So even if I amonly 10 days away from dying at that stage, too bad, I went overtheir limit. I am then on my own to die alone at the worst time. Isthat how most of them work? I think its barbaric to leave a person,walk out of their house with the equipment, meds and staff and justleave a person alone at their worst time, closest to death.I think when a person leaves this life, they have learned allthey needed to, so they have "graduated" from this school of lifeand they get to go home. She just learned faster than the rest ofus. Some of us don't have as much to learn as others. Some religionsbelieve that our souls lived with God before we came here, andlearned different amounts there, so that made us have to learndifferent amounts when we got to earth. some religions believe thatbabies who die were so intelligent and wise, that all they had to dowas to get a body for the resurrection. They didn't need to learnall that we have to learn. Also that same religion believes thatpeople who are born with mental limitations, like Down's syndrome,etc. didn't need to learn much, but that we need to learn from them.So now I am stuck in planning my funeral. I NEVER imagined Iwould be so alone at the last stage of my life. I moved to a newcity and was too sick to go out and meet anyone, so there would beno one to come to my funeral. All the years I was sick, I did haveideas of what I wanted, and now I'm a bit heartbroken to know itwon't happen, because I planned on sticking around (in spirit) tosee it, and to see who cared enough to come. I did see a movie where a lady had her funeral BEFORE she left, so she could see who would come etc. but then the lived longer than the Dr. said, so people got mad at her instead of happy for her. People are strange sometimes. I hope to hear from someone soon.
How do I tell, who do I tell? When do I tell? I have not even told my family or anything. I don't think I could bear their sadness, and couldn't bear their grief. It would "break my heart" even more. I told a few friends, but 2 decided never to speak to me again. One was onlineand I didn't know how much he cared about me, and he almost had astroke. Had to lay his head down on his desk for a long time, andwhen he recovered a bit I told him to go get a wet paper towel toput on the back of his neck and cold water over his wrists to drawthe high blood pressure from his head to the wrists.The other friend is just too sad about me dying, and doesn'tknow what to say to me anymore. I told her to just forget that I amdying, because if I have it my way I am NOT dying yet, and just talkabout everyday topics like we usually do, but she can't do it. Shewont even take my emails or phone calls anymore...so this REALLYmakes me feel alone. I don't want to cause anyone else to suffer.Has anyone else been through this or had a family member go throughall these things that happen when they get told they are dying?Blessings,Sheila
There are some books for people that are dying: One Year to Live by Stephen LevineOn Death and Dying by Elisabeth Kubler-RossDying WellHandbook for MortalsThe Grace in Dying : How We Are Transformed Spiritually as We Die Sacred Dying: Creating Rituals for Embracing the End of LifeAfterShock – What to do next when you or someone you love gets devastating news

I will live as fully as I can as long as I am alive, and I will just make my final arrangements and leave it at that. After all, we are all going to die and don't know when.
Actually my heart has stopped more than a dozen times and they have brought me back, then tell me I can't live more than 2 years, and I tell them "So? my heart will stop, I'll get sent back, and I'll still be alive" but this time when the tests looked so much more serious, it felt much more real when he told me I might not make it through a year...but I think I have things left to do on earth, and since my heart kept stopping, and I would have driven everyone in Hell crazy, and Heaven won't take me until I learn what I was sent here to learn and to do, so I'm stuck here on earth for a while. lol. Its just quite hard to be so sick and so alone, so support groups are GREAT.
There are THOUSANDS of groups for people who are grieving for others, very few for those who are trying to deal with the emotions of dealing with their own demise. Some say my family will never forgive me if I don't tell them I am dying, so they can say what they want to say to me, finish things with me, but how is that different than what happened to your daughter? No one had a chance to say goodbye to her either or say last words of love to her either, but you can still say those things even after the person has passed, and the message will get through to them. They KNOW we love them, and often they try to get through to us that they love us too, and that they are fine, so that we will stop grieving and keep living.

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