Friday, 1 July 2011


Today would also be Princess Diana's 50th birthday. There is a very nice article and pictures commemorating her life @ http://bit.ly/lb9EES. Some people have said I looked like her sister as a teenager. Pic on left is me @ age 16.

Susie D. I'm not sure if you know how blogs work yet, but if you click on "3 comments" under the Wheelchair fiasco story, you will see where I replied to you. I will also reply to your kind words @ http://www.lifewithlupus.org/ . (Yes that WAS a plug for anyone with lupus. Great support group.) There needs to be a support group for people with multiple illnesses, because when we are suffering but don't know which disease is causing the problem, we just avoid them all. Some of what I wrote to you will be used in this update.

I kind of shocked myself to see that I have not posted for a week, when so much has happened each day. Since Mom came home, (June 20) I have been so rushed off my feet, or else crashing in pain, so I have not had the concentration or strength to think of what to say here. Today I am stuck in bed pretty much, except for a couple of crises that came up and needed my help, and doing laundry. Even on days I can barely move, urgent things happen or need doing.

The nurse came for her half hour this week. She will come again on Tuesday, as will the high school girl I hired for some housework and errands. So I am thankful for what little time they can spare, until my housekeeper finds a full time job, then we will go back to searching for an honest lady, which has taken up to 5 years at a time. I LOVE HELPING PEOPLE and that includes my mom, whom I respect and love dearly, but how i wish I felt better so I could do a better job.

I feel very weak because I complain a lot, which is a type of a cry for prayers and support, because I feel so alone physically in all this. I know I am being carried some, because if I used only my own strength, I'd be bedridden. I'm one step up from that, kind of like a zombie. lol. I complain because I don't handle all of this well at all. So many say I'm so strong, but I just see the things I am not getting done. Last night needed to go to the hospital again for pain and heart trouble. I am pushing myself past my limits every hour, then by 4 PM I a crash, not able to move or get either of us something to eat or drink. I take some meds and then by 9 or 10 I can help with a drink or soft food for Mom, and something light for myself. I just roll in pain when I crash, and I pray continually all day. It just feels like Satan trying to counteract everyone's prayers by creating another crisis every hour. Things that never happened before are hitting us all at once. Adds greatly to the hardship.

I AM thankful for all my blessings, but without strength to meet your needs each hour, all the luxury on earth is worthless. About every 3rd or 4th day I spend the day in a semi-conscious state. (part of lupus and diabetes). I told the Dr. my whole new set of symptoms, and he checked my records and said "Well, looks like you are having your first flare-up of Multiple Sclerosis." Oh great. As if I need that on top of everything else. It made me realize why so many local people, even church people, don't want to be our friends. I can see them saying "It's impossible for one person to have that many diseases!" I can hardly believe it myself, and I live with them, so how could others believe it? Did you know Job, in the Bible, only suffered for 5 months? That seems to barely compare to people who suffer for 50 years or more. I was hoping all this extra physical activity would help me lose weight and make me healthier, but I gained water/fluid weight due to heart failure/damage, and I'm getting worse every day, not more healthy. One good thing about this is that I don't even have the strength to worry about tomorrow, because I'm just concentrating on what needs to be done in the next hour, then just collapse instead of relax. Wow, I have spent almost 12 hours writing this in between keeping busy and crashing.

Thanks all for being patient with me. I think if I had even one local friend or a spouse to talk and help, maybe I wouldn't seek prayers and support so much online.

Bless you all,


P.S. Please pray for a friend (Pia Go-Alano) and her father. They flew to China for her father's cancer treatment, because this one hospital has such a

high success rate. You can read her daily updates @ www.piasjournal.com .

Is anyone else on blogspot having trouble with spacing? I have now tried 5 times to move all the paragraphs closer to each other and save them that way, but when I "view blog", they are always far apart from each other again.


Sheila--you looked amazingly like Diana in that photo--anyone would think it was she!

Sending you love and strength, in all your occupations, love is with you...

Come visit my blog if you have time, the latest poem makes me think of you. (and there's a cute photo)

hi sheila. thanks for the link.

let me give you a big cyber (((HUG))). sheila, please stay strong and hold on tight to God. He will never leave you nor forsake you.

i also get the same problem --- those gaps in between paragraphs. this is what i usually do.

go to "edit" then then "edit HTML" (besides "compose").

if you see this ---
< span class(equal sign)"Apple-style-span" style (equal sign)"color: #444444;" >< /span >

delete that code on every after paragraph that has this huge gap.

then preview. see if the adjustment is okay already.

hope that helps.

Happy Canada Day Shiela. Hope you are in a better and healthier situation nowadays.Thanks for the post. God bless you always.

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