LIFE --1 Hour At A Time!

>>means "new paragraph starts here". I still don't know how to make my posts separate into paragraphs if I type them at the blog website. It will only separate into paragraphs if I send it from my email program.

>>The captions in the above picture:
>>Below the first set of brains, it says "Scans of a normal brain and the brain of a fibromyalgia patient"
>>Below the second set of brains it says "Scans of a normal brain and the brain of a CFS (chronic fatigue syndrome) brain.
>>The colored areas represent areas of the brain that are active and helping the body and brain to function at full potential. In the diseased brains, there is less activity, so our bodies do not function as well, they do not do what we want them to do, and this really accounts for the brain fog, or fibro fog, where we get forgetful and can't concentrate on anything very well and make a lot of mistakes.

>>If you want to look at that picture more closely, left click on the picture and it will enlarge.

>>See? There is a DEFINITE disease, a DEFINITE difference between a healthy functioning body, and a the way our brain makes us function if we have fibro or CFS. This test alone should prove there is a common denominator, a place to start with the research to treat this disease. It also proves it is NOT just a person complaining too much, as the New York Times insinuated today (see next post below)

>>I got it from a site that no longer exists, the website address is at the top of the picture, but it is no longer a used website. I got it more than 12 years ago, whent the internet first started, so if the medical world had information about these conditions, I wonder why it was not publicized more and why more has not been done. I know that in Canada its almost impossible to find a Dr. with enough time or compassion to research or treat difficult cases. They are even telling us which diseases or conditions they refuse to treat, and its so difficult to get another Dr, the patients can't complain. So if my Dr. refuses to treat rashes or kidney problems, then if I develop those problems, I am on my own, because I can't find another Dr. One lady told me she thinks even Mexico has better treatment in the hospitals than what I have been experiencing here.

>>I, like many or most lupus patients, have fibromyalgia on top of lupus, (and 7 other serious conditions which lupus caused) and I have been studying about it so much that I feel like I could teach the researchers a lot!! It affects the nerves, muscles, connective tissue, the parathyroid, which controls every chemical in your body and brain,and all "cycles" of your body such as when you wake and sleep, get hungry or not, run out of energy or get invigorated. Everything in our body goes in cycles, and the parathyroid helps regulate those cycles. Certain chemicals are released at certain times during the day to digest food, other chemicals to make you sleepy or stimulated, others to make you relieve yourself in the bathroom at certain times, and all those things are affected in fibromyalgia. Its not just sore muscles. Its a horrid epidemic of a disease. The medical world likes to blame the patient when they can't find the answer. They forget that even diabetes used to be classed as a form of insanity before they found the cause and test for it! There is definitely something wrong, they just have not found the test or the done enough research. It takes the average of 11 years for a person to be diagnosed with these "invisible illnesses" such as lupus, CFS or fibro. Before diagnosis, people are thought of as fakers, lazy, hypochondriacs, neurotic, anything the Dr. can blame on the patient. The patient's family and even the patient can start to doubt themselves and wonder what they are doing to themselves. I suggest a book I call my "Fibro bible". Its a book written by a Dr. who has fibro. Its called "Fibromyalgia and Myofascial Pain Syndrome" by Devin Starlanyl. She names every possible symptom and why it happens, and has chapters about how to manage almost every part of your life while living with this disease. I bought mine used online because its expensive, because its almost like a textbook. You can buy it used at http://www.half.com/, http://www.ebay.com/, http://www.alibris.com/, http://www.amazon.com/ , and I'm sure there are other used bookstores online as well.

Blessings,

Bluebirdy

Posted by Bluebirdy at 22:44  

Labels: chronic fatigue syndrome, fibromyalgia, medical system