Please help change people's opinion of Fibro!
Hi gang;I get the newsletter from the American Pain Foundation. Just now I got an alert that they need everyone's help that has fibro. It seems that some big wig Dr. wrote an article in the New York times saying that people with fibro are just complainers who won't deal with the aches and pains everyone has (which is also exactly what my rheumatologist told me...I almost kicked him so he could feel my pain)lol... and the article goes on to say....well I'm getting ahead of myself here. I am just going to copy the letter, and I ask you to use the sources below to write your own short note to New York Times to try to undo the damage that Dr. may have done, and to teach others about fibro and what it really is like to live with it. The colored sentences are clickable links so you can see the actual article and instructions on how to contact the editor or New York Times, which goes world wide! Here's the alert I got:BlessingsBluebirdyMedia Alert
Dear APF Advocates,
This week, there has been much controversial media coverage on fibromyalgia and chronic pain. The New York Times published an article, Drug Approved. Is Disease Real?, which questioned the validity of fibromyalgia and chronic pain itself. The article suggested that the pain of fibromyalgia is a case of people who "obsess over aches that other people simply tolerate," and that the pain is just a "physical response to stress, depression, and economic and social anxiety." This is an extreme and harmful mischaracterization of the reality of pain.
See Background Information and Additional Media Coverage
The public and the media need to hear from you! whether you are a person with pain or someone who cares for or treats people with pain. APF is dedicated to raising awareness of fibromyalgia and other painful conditions and the fact that people in pain have a right to timely, appropriate pain care.
Please Take Action NOW: Write a Letter to the Editor of The New York Times.
Thank you for advocating for people with pain. Together, we will make a difference!
Best regards,
The American Pain Foundation
Hi Bluebirdy,
That's the first time I heard that disease. It's a good thing that there is now a drug that can ease the pain it brings. I can not be sure whom I will believe, those who say that it's real or those who say it's just magnified pain. Anyway, thanks for informing us regarding that disease and the different views of doctors around. God bless you and your family with divine healing and deliverance. Have a wonderful and stress free day in the US always.
Mel Avila Alarilla said... Fri Jan 18, 04:45:00 pm GMT-7
Hi Mel!
Thanks for your comments. Fibromyalgia has only been around for about 20 years, and the person who wrote that article is very much behind in information, because the CDC (Centers for disease control) in the USA have researched this disease, and have put it in their records that it is a devastating disease that causes serious disability. So the Dr. who wrote that article does not even keep up with the latest information from his own medical society. I have fibro, and it is painful enough to need morphine, and often even that is not enough. If I were you, and I never heard of a disease before, I think I would listen to the people who have the disease, not the people who have never felt this pain. Just the same way when people condemn us for being Christian. They learn lies about us from Christian haters. If I was not Christian, I would rather learn about that religion from real Christians, not Christian haters, just like I learn about Islam from real Muslims, not Muslim haters, and I learn about Judaism from Jews, not Jew haters. Do I make sense?
I am in Canada, not USA. The medical system here is horrible. I think even third world countries might have care that is better than here. Thankyou for caring, for being my new friend, for being the new "Mel" in my life since my Dad passed away 7 weeks ago. I enjoy your comments and I read your blog.
Blessings,
Bluebirdy
Bluebirdy said... Fri Jan 18, 05:02:00 pm GMT-7
Smack that doctor, shame on him. I have it on top of the lupus and well its heck to live with.
chronic chick said... Fri Jan 18, 10:03:00 pm GMT-7
Post a Comment