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Showing posts with label God's help. Show all posts
Showing posts with label God's help. Show all posts

Sunday, 14 December 2008

Amazing What A Human Can Endure, Isn't It?

Find all sorts of goodies with this slogan and the bottom of the blog at www.butyoudontlooksick.com

What's the saying? No rest for the wicked, or no rest for the weary? I must be both. lol.

Crazy 2 months-unbelievable amount of legal work I had to do, then HUGE work project for US government, then Mom in E.R. with flu/pneumonia, then I got flu, then pneumonia/bronchitis/asthma, then my computer died, losing 10 years of every precious picture and bit of information on it, then second computer breaks, then I develop some problem that feels exactly like I am in labor, end up in the hospital, I get abused, and my mother gets bullied and pulled out of my room by security guards because she told my abusive male nurse that I was in too much pain to change myself, so could he please get a woman nurse if he is not willing to help.


I know already which friends I will be making angry by saying that I am exhausted and a bit discouraged, but sorry if I offend those of you, because what I am going through is VERY tough at the moment. IT WILL get better, but unbearable pain+exhaustion+abuse when I seek help, affects your strength and attitude. Everything is NOT so positive right now. I WANT TO BE UP AND ACCOMPLISHING THINGS AND GETTING READY FOR CHRISTMAS!

This section was written on December 7, just so you can keep track of what has happened in what order in this series of events.


The mystery of the disappearing decade.

I have lost track of time. It has been week after week of one serious occurrence after another. I apologize for the length of this blog. I have shortened it many times, but it's the only way to explain my MUCH TOO ADVENTUROUS last month or two.

It seems as if a few overwhelming events happened before I took Mom to the hospital for the flu a few weeks ago, but I can't remember all of them. I know the Internet service man came to replace my modem and cable wiring for my Internet. A couple of days later, Mom got pneumonia or bronchitis and I got the flu. Then Mom's health cleared up and I got pneumonia/bronchitis and asthma. I was planning on getting a computer repairman to come to the house for about a month because of computer problems, but there were many delays. A complicated project of proofreading I had to do for US gov't, and then me getting sick so I didn't want to pass my illness on to the repairman, so I delayed calling, until my computer had a meltdown.


Well about a week ago, (maybe more, I have lost sense of time), my computer died. It would not even turn on. My brother was good enough to take it into a shop to have it fixed. I had a note on the side of the computer telling the problems I had been having with it, along with a note that said DON'T ERASE ANYTHING WITHOUT MY PERMISSION! I HAVE IMPORTANT GOVERNMENT DOCUMENTS ON HERE, AND ALL MY EMAIL ADDRESSES FROM THE PAST 10 YEARS ON THE DISK IN THE CD ROM. I had 10 years of important information on this computer, and I had saved the most critical information on a disk, which was still in the computer, but the power could not be turned on to get the disk out. The tech took apart the machine and found that the motherboard had burned out, due to the fan breaking. (The fan cools down the parts inside.)

Something had also happened to the hard drive as well, so I LOST ALL INFORMATION! The Tech couldn't get the disk out for days, so I just went into mourning, thinking of all that I had lost.


If any of you have my email address, will you please write to me to I can add you to my address book? Also if you have any old emails from me with email addresses of my friends on them, could you send me those? Unless people write to me, I have lost them all! A few might write to see if I am still alive or not, but I feel like everything I've done from bed on this computer for the past 10 years has just been lost. All my work, friends, writing, all my pictures of my grandchildren, 2 of which I have not even met yet, collections of encouraging inspirational forwards, all my writing, all my journal entries, books that I had saved information about and started to write... all that I have learned from the hardships that I have experiences, encouraging emails from dear friends that I read again and again, all the legal work that was recently sent to the courthouse to get my husband home due to hardship...all gone! I thought one of the reasons I was still on this earth was to write these books. Now everything I saved for them, every thought I had about them is GONE! So I even felt like my life's purpose was lost.

It's good that this happened AFTER I sent the info to the court, but this lawyer loses half of my information over and over, so if she loses it again, I don't have extras to send to her. I think that I am losing hope of being with my husband. Too many things have gone wrong for 5 years of trying to get him here. Not only do we have to get him out of the war zone, as a civilian instead of a military man (but he is working for UK and USA gov't in translations), but also he has to immigrate. One of the things needed for me to sponsor him is that I must be able to take care of him for 10 years in case he can't get a job or in case he gets in an accident or gets sick, and the legal system's stress has made my lupus so severe that I can no longer even care for myself, much less care for someone else. My husband is angry about that, because he WANTS to be here to help care for my family, who are so alone we don't even have a friend or neighbor to help us shovel a sidewalk or take us to the hospital. He wants to care for us. I think I won't be with my husband until after we are resurrected. I have days that I am very hopeful about us, but right now I am losing hope about us. Maybe because I was/am too overwhelmed to think with strength and positivism.


I am so tempted to go back to saving everything possible with pen and paper again, like before I got the computer 10 years ago, and anything electronic that MUST be saved, I will be saving to a removable USB memory stick that has more memory than my whole computer. I will use the computer for keeping in touch with others, and research, and for my writing, and proofreading job, but not for storing information.


Thank the Lord that we had a spare computer in the house that we just paid $150 to get repaired a few days before, so I started to hook it up to the Internet, but got to a certain point where I had to call my ISP (Internet service provider) to get codes and numbers, so I called them, and the technician on the phone started arguing with me, telling me it was impossible for me to have 3 computers in my house that all were connected to the Internet. I asked if I could please talk to someone else because I really don't want to fight, I just want my email working again. He said "OK let's try something else here." He led me from one place to another in my computer, and then told me to delete my drivers! I don't know much about computers, but I know the drivers are what make things work, like the monitor, sound, and everything else. I said, "Erase the drivers? Then how will I run my computer?" He said he wanted to see if those drivers were the reason for not being able to get onto the Internet, then he would help me re-install the drivers from my original disks in a minute. So I did what he said, then he told me to call the shop that the computer had just gone to a few days ago to see if they were able to get it onto the Internet, then call him back. I called the shop; they said they COULD get online. I called back the ISP, and that same technician refused to talk to me! I asked to speak to a supervisor, and told him that one of his employees just told me to delete all my drivers, and that it would cost about $150 to get the computer fixed, and I already had one computer in the shop, and is there any help he could offer me, since it was that employee's fault? He acknowledged that it was the company's fault, and said he would send a computer tech to the house in the morning to re-install everything that was lost. I really appreciated him doing that. So now I had 2 computers break down in 2 days, and was still a bit sick. I was so nerve-worn and physically worn out, and afraid that I would lose most of my friends.


What a blessing I have this blog!! All that is stored online on this blog is safe, and all of my dear friend that I have made through this blog can still find me. If not for this blog, I would have felt like my life just disappeared into thin air.


After a few days of taking the first computer apart, the computer shop got the CD with my info out of the computer, and I got it back, but something happened to that also, so when I tried to transfer the information back onto the spare computer, it tells me "transfer error", so I can't even retrieve the address book and other important business information and pictures from the disk! It will take months to replace every program and retrievable information back onto my computer. This computer has less memory, so I will have to use the memory on the computer for the programs, and save anything else on an external hard drive.


I know that there is a reason for everything, but I am eager to know the reason for this. I know things just happen, but to not even be able to get my information off of the disk I saved it to, that's just strange. Too strange to make sense.


I went into mourning for about 24 hours. The more things I realized that I lost, the harder I would cry. I got myself so upset that I started thinking about not only the things I lost on the computer, but that I had lost my first husband, all of their family that I loved like blood relatives, I lost my children when I had to leave the USA in a hurry, I lost my grandchildren because I have been too sick to get back to meet them, I lost my Dad, one brother is estranged, one sister told me she would never travel with me again to help me go see my daughters because she is scared of my diabetes. She did take me to see one daughter 8 years ago; I got to see both girls for 3 hours and to the younger daughter's wedding. Now she tells me she is going to visit my daughter and go to her Mrs. Idaho pageant that she will not go with me. I need help traveling, so I won't be seeing my daughter in the pageant. So I feel like have lost my sister. I feel like I have lost everything except my Mother. I am so very grateful for living in a peaceful country with no pollution, and for my overflowing basket of blessings, and for having food and shelter, but feel like I've lost everything else. I guess the saying "If you have your health, you have everything" is true, and the converse is true. If you are too sick to even care for yourself, you don't have much of a life.


Through the mess of trying to fix these 2 computers to get back online, my brother who lives locally completely flew off the handle and said some emotionally destroying things, so I thought I had lost him too, and God has some unknown reason for keeping my new husband and I apart, so I was mourning for everyone I had lost. There will be friends who will think I am dead, or think I am just ignoring them, and I hope some will write to me so I can explain what happened, and get their email addresses again.

Another blessing happened though. After my brother's heartbreaking outburst, the next day he brought me a cute toy white monkey holding a red heart pillow with "I love you" on it, as an apology, so I gave him a big hug and was so happy that he apologized and made up with me. With his mental illness, he's very much a "scrooge" (incurable negative grouch) and so I didn't expect him to ever get over his anger. Because of lots of prayer, and a soft hard under a hard exterior, he did. He felt sad for making me upset.

It took 5 repairmen to get me back online, working on 2 computers. It's also a blessing that we had a spare computer so I didn't have to wait to buy a new one. After the ISP technician left, my brother decided he would help by taking the RAM (memory card) from my first broken computer and put it into this second computer. He opened it up, put in the ram, then when he closed it up, a part from the back of the computer fell out, and I was no longer able to get online again! This made it the 4th time that things were done to cause the computer to not be able to get online! I didn't plan on telling him about the problem, because his first abusive outburst to me happened when I was telling him that he didn't have to worry about fixing my computer, because that a technician was being sent over to do it for free, and he yelled and screamed that he had to do it himself, and that's his curse in life and it never ends and on and on, and I told him I was trying to make this easier for him, and he told me he was trying to make things easier for me, and we fought about it. So there is no way that I could tell him that he broke my computer again, or there was no telling what he would do in his mental illness-scrooge-state of mind. I didn't know whom I would get to help me this time. I don't have the strength to carry the computer to a shop to fix it and I felt too sick to get a technician to come sit in my bedroom while I was sick in bed, so I just thought I would do without for a week or so. A couple of days later, my brother came over and asked why I was not on the commuter, because usually the computer is on 24/7. I just told him I was in too much pain right now, but he said "That never stopped you before, isn't it working?" I said, "I'm not sure, when I feel better I will test it and see." He came over and saw the part in the back of the computer that had fallen out, swore, tore all the wires off, walked out of the room with the computer, yelling about this being his curse in life and he wishes he could never see another computer as long as he lives and why is God doing this to him etc. etc. and he fixed it in just a couple of minutes, and brought it back in, turned it on, and it got online! I told him thanks a million and I really appreciate all that he has done but to please turn it off because I can't even bear the light or sound right now. So after a few hours when the pain eased up, I was happily, finally online again!


I was surprised that I cried so hard when I lost all of this info, and I really worked myself into a bad emotional place. I just had too much stress all at once and not enough energy to deal with it all. I am still trying to recover from the pneumonia/ bronchitis/ asthma, which has caused other complications with diabetes and lupus, then I had 4 MAJOR confrontations while trying to get my computer back online, 2 with family and 2 with the Internet company. I was sensitive due to the anniversaries of Dad's death, of my parents marriage, my first marriage, my new marriage, (all within days) and started wondering why God wanted me so very isolated and alone despite how sick I am, and how much help I needed. I started thinking of how Mom is the only human being I talk face to face with and can hug, and what will I do when she dies? I'm so glad we are so close and love each other so much. I started feeling so useless and hopeless and I hope someday to understand why God wants me to be so very alone (physically) through all of these trials. I know that was just Satan working on me when I was already down, and it passed soon. Our Redeemer IS there to comfort us, and He does, whenever we ask. He helped me remember many comforting scriptures, which calmed me down, such as "Worry not for tomorrow, for tomorrow will bring troubles of its own." And "He will supply all your needs" and "I will never leave nor forsake you" and many more. He is more powerful than Satan, and can send Satan away. I am blessed to have the emotional support of my Internet friends, and it helps A LOT, but no one can get through life alone. We all need the help of other people physically, and I hope the Lord will soon help in that area. I was ashamed of my "falling apart", but I guess everyone gets overwhelmed sometimes.

It does feel like I lost my mind, because everything that is in my mind was in that computer. My daily chores, weekly, monthly, my budget, the bills I have to pay, gift lists for all year long for birthdays and Christmas, grocery list, and due to my bad memory from illness, I have to write down everything. If I don't write down to brush my teeth, even that sometimes doesn't get done.

I have no right to complain, really. All of these problems are nothing compared to the torment of war that my husband is living every day, and the hardships of most people in these last days. I was ashamed of my negative feelings, but those are only human. Well I am thankful to be online so soon. It could have been worse. My sister is traveling here tomorrow in bad weather, so I am praying for her safety. She says she will help me get my Christmas boxes to the post office. I should go get her family's gifts wrapped and do some decorating before she gets here. It feels good to be in touch with you again. To you, it was just a couple of days since you heard from me, but to me, it felt like a traumatic month or so.
Blessings, All!
Bluebirdy


Written Dec 10/08
THE GIFTS THAT SCARED PEOPLE TO DEATH
This is just the latest of my husband's experiences there in the middle of the town that the Taliban are attacking. Yesterday is EID, which is the Muslim equivalent of Christmas. They have Eid in the Himalayan Mtns where my hubby is. It is the day that Abraham took his son to a mountain to offer him as a sacrifice, and then God stopped him before he actually did it. The Muslims slaughter an animal such as a goat or cow, and have a feast with the meat and exchange gifts. The houses in the area where my husband is, is like the times of Jesus. Each house is built in a square, with the rooms along the outside walls, then an empty courtyard in the center. There is a door from each of the rooms to the center courtyard, and there are steps up to the roof of the house. If anyone remembers the story in the Bible of the house where Jesus went to preach, and there was a very sick man laying on a stretcher, and he was lowered from the roof into the house where Jesus was preaching, well I could not picture how a person could be lowered into a house from the roof until I saw pictures of these houses with the courtyard.

Anyway, in the morning, they heard a huge helicopter, called a war-ship, getting closer and closer. It has 2 ends so it can fly backwards or frontwards, and they can shoot from the helicopter from both ends. It was getting so low and so loud it was scaring people, so everyone on the street where the houses are where my husband is, came out of their house into their courtyard. It was so close, they thought the people in the plane were going to start shooting into the houses or land on one of the roofs or something. The young wife next door to my husband fainted, and the heart specialist in the house on the other side of my husband's also passed out. They threw something out of the warship, and an elderly lady yelled, "IT'S A GRENADE! RUN!" She ran. When my husband looked closer, it was flat folded up cloth in plastic. They had thrown out about 5 in the courtyard of each house. They were shawls, (head coverings/hijabs), pretty ones, as EID gifts!

My husband has medical experience, and a few seconds later someone was at the door asking him to come next door to check the heart specialist who had passed out because he was not waking up. My husband went there, check the heartbeat etc. and his heart rate was dangerously slow, so he got the sons of the house to get the father to the hospital immediately. Then he called me to tell me what had just happened, and while we talked, another phone rang, and when he answered it, he was told that his neighbor had just passed away.

I want my husband to write a story to the newspaper, using an anonymous name if necessary to protect his safety, to tell what happened and to tell whoever gave those gifts that it was not such a good idea, and he wonders how many other people fainted or had heart attacks from that "gift giving" excursion.

About every 3 days now he has a very close encounter with death, even though he is working there as a civilian translator, not a soldier in combat. Last week there was a Taliban yelling at a woman who only had a shawl on her head instead of wearing a bursa that covers you from head to toe. My husband risked his life and went to the Taliban man and said "excuse me, but if you will have mercy on her, I am sure she will not make the same mistake again. Will you let her go just this once?" The Taliban man asked the woman if she will wear a burqa next time and she said yes. Then the Taliban guy told my husband "You know, if you grow a full beard it would be much better for you." He said this because this month, laws were made that women must wear burqas head to toe and women must not work in public anymore unless it is in medical care, and men wearing no beard can be imprisoned for 60 days, and partial beard can be imprisoned for 30 days. My husband has a baby face. He can only grow a partial beard, so he could have been taken prisoner right then, but my husband said "I am really trying, sir. My beard has never been very heavy. I know I should have a beard, and that woman knows she should have a burqa, but these rules are very new to us." The Taliban said "Would you like to sit and have tea with me?" My husband said "No thankyou, I need to get my marketing done, but thank you for being so kind." So now my husband hopes that one man stays guard on that corner, because he has made friends with him and will be safe as he goes to and from market with only part of a beard. Another Taliban man might not be so merciful. It's so sad. This valley is called SWAT; it is halfway between Afghanistan and China on the Kashmir border. It is the "Shangri-la" of the oriental traditional stories, a heavenly valley now overtaken by the Taliban because they want it for their own headquarters. A heavenly, peaceful mountain valley, away from civilization, has now been turned into a valley of torment and war. I have almost given up hope that my husband and I will ever be together until the resurrection. We are really stuck in a touch situation. We love each other too much to split up and be with anyone else, and there's no way we could stop thinking about each other, yet we can't be together either. Star-crossed lovers, maybe?





Written Dec. 13
Just moments after my sister left from her visit, I ended up on the floor, writhing in pain, in more pain than I knew a human being could endure. I was taken to the hospital, and abused so badly, and even my mother was abused so badly when she came to be with me, that I had to write a letter to the hospital administration, and if I don't get any action from them, I will take the case to the newspapers and to the higher medical boards in the province. I have HAD IT with this medical abuse when I am too sick to even defend myself! I was literally SCREAMING in pain and couldn't control it, and could not move on my own or think, and could talk only between screams and breaths, 1 word at a time...and when I needed help the most, I was insulted, neglected and my mother was taken out of the E.R. by security guards! Rather than try to write the whole incident again, I am going to post here the letter I wrote to the Hospital Administration. If this abusive male nurse dies not get disciplined from administration, I will take the case higher. I have changed some of the words for this blog, in case some of you are sensitive to terms of human functions. I made it more technical for the hospital administrator.


Dear Administrator;
I had an experience in the E.R. that I need to let you know about. I am upset enough that I am considering going to the newspaper and perhaps some higher authorities unless you can help me discipline the male nurse that was responsible.
On Thursday, Dec. 11, it was the second day that when I had to use the washroom, my whole torso would create one huge muscle spasm/contraction, like it felt when my body was being squeezed while giving birth. I had no clue what could cause that, but it would last for at least half an hour. It was just as intense as giving birth. I have had kidney stones, lupus nephritis kidney attacks, and other severe pain that I live with regularly, but NOTHING compared to this. I wondered if I was giving birth to a kidney or something! Friday afternoon, it was not going away as it had each time previously, and whatever was happening to me was squeezing me so hard that I fell to the floor and it was squeezing air out of me and through my throat, making me scream, and I couldn't control it. By then the pain had localized to right high kidney area and radiated down to my bladder area, and it was worse than any pain I had ever experienced.
I live with my mother, and in between these spasms and breaths, I yelled for her to call 911. The paramedics got here, but my house is built in a way that there's no way to get the gurney/stretcher into the house, so they lifted me up from under my armpits and were pretty much carrying me out, helping scoot my feet ahead at the same time.
When I got to the hospital and they helped me roll onto the hospital bed, I was still yelling and so terribly embarrassed about it! I have to deal with a lot of pain DAILY, with lupus and trigeminal neuralgia and fibromyalgia, but I have been very strong and silent about it. I avoid the E.R. until I think I might die, because in my experience of living in Lethbridge 11 years, I have found that if you go to the E.R. alone, you are insulted, abused, neglected, under-treated, but as soon as you take someone with you to be a "witness" or advocate, the things that the staff would say to me WITHOUT a witness/advocate, just don't happen.
I think I passed out from the pain once I got on the bed, and was awakened by a male nurse saying "Sheila, take off your shirt and put on this gown." He THREW the gown at me. I said in between breaths/spasms..."I can't move." He said, "The paramedics told me you got up and walked to the ambulance yourself, so don't give me that, and your screaming is completely unnecessary and you can stop that right now."
If I would have had a pillow, I would have put it over my face to muffle my screaming. He said "Well I am NOT going to change you, and you won't be seen by a Dr. until you change your clothes, so get to it." I tried for about half an hour, and he came back and asked what was my problem, why wasn't I changed, and I said I needed help. At that moment my Mother walked in. She is pretty much bedridden. She only came out of the house to be with me at the hospital. She heard the male nurse say, "You won't be seen until you change your clothes so you might was well get at it." Mom said, "She can't move! She needs help. She's been screaming in pain! If you don't want to help her, why don't you get a female nurse to help change her?" He pointed his finger in my Mom's face and said, "YOU sit DOWN! You are making her THINK she can't do it! She walked to the ambulance! She can change her clothes!" Mom started to describe that I did not walk alone, and the male nurse left and got the security guards, and told Mom to leave. Mom said, "I don't want to! She needs someone with her!" The male nurse said, "Are you going to leave alone or do these security guards carry you out?" Mom said, "I have a right to stay with my daughter!" So the male nurse had the security guards grab my 75-year-old frail mother who has multiple SERIOUS illnesses and haul her away. I didn't know if she might have a stroke or heart attack from that treatment, I didn't know if she was going to jail or going to be locked into a room or be sent out to her car or what was going on, and that made the pain even worse, so I was trying to cover my mouth with my hands to make the screaming and crying stop. I didn't know there WAS pain like this. I was thinking I was going to give birth to a kidney or that something inside me had torn apart or something. Now I was so afraid for my frail Mother, and also very afraid for myself because now I had no advocate, and this cruel nurse could pretty much treat me however he wanted, and it looked like he was going to make me suffer a lot during the worst pain I had ever experienced in my life!! I was SCARED, and now shaking, moaning, crying, and pushing like I was in labor, and pushing on my kidney with my fist as hard as possible because it seemed to help.
A female nurse came in and asked me to explain what I was feeling. In between these contractions or "squeezing attacks", I said "Like pushing out a baby, plus burning kidney pain, going from back to front." She left, and cam back with the male nurse, who said "If we raise you up, can you help us take off your shirt?" I nodded "yes". They raised me up, pulled off my shirt and put on the gown. Then the male nurse said, "See? You could have done that!" I said "No, way." Then he started trying to get an IV into me. He tried 10 times I think, from the marks on my arms, hands and even fingers, and he said "Has anyone ever told you that you need to lose weight?" This man was as fat as I was, but I didn't dare tell him he also needed to lose weight; or for sure he would have tortured me, so I said "It's tough when you have my diseases to lose weight." He said, "Well you're too big to find a vein!" Through my pushing--I said "Did anyone tell you that you need to learn some compassion, and people couldn't find my veins even when I was thin!" I'm not sure if there was 1 male nurse, or 2 that alternated coming in, because I couldn't see clearly due to the tears. I am just grateful for the female nurse that knows that when you are pushing out a baby, you can't move or think or do anything but push and moan.
They got some pain medicine into me, then helped me get to the bathroom for a specimen, and while in there, the attack started again, so I took paper towels to cover my mouth as I screamed because it echoed so much. After half an hour in there, a female nurse knocked on the door to see if I was ok, I said no. She opened the door, and said "why?" I couldn't even talk. I was doing the Lamaze breathing technique used when I had my children. She asked if I needed help to stand up. I nodded my head yes, so he helped me up and pulled up my pants and helped me back to bed.
When the urinalysis came back, Dr. Barsky came to tell me that I had a "little" infection and that he was going to start an antibiotic IV drip. I asked how a "little" infection could hurt more than any kidney stone or lupus nephritis attack I ever had, or even more than another painful condition I have, trigeminal neuralgia, which is also called the suicide disease due to its severity, the Dr. walked away. When the nurse returned with the antibiotic, I asked her the same question. She explained that if your kidneys have any damage, kidney pain can be worse, and maybe it was not a "little" bit of infection, maybe it was more severe than that.
I have also got arrhythmia, and I have had instances where my trigeminal neuralgia pain has made my heart stop. That day I was wishing it would make my heart stop again. I just wanted to die if I would not be getting any help until I could change my own clothes, because I could NOT change my clothes, so I would be there forever in that pain.
I have stayed at home through very serious pain, too serious for me to even get out the door to the ambulance, so I just stayed in bed and fought through the pain myself. Some days I thought my heart would stop and had chest and arm pain, but I knew I had no one to go with me to be my advocate, so I was actually safer to stay at home than to go to the hospital when I was too sick to defend myself.
I don't know what that male nurse was thinking, but I don't EVER want that to happen to another person again! I would appreciate if you would locate the male nurse that was assigned to me. I think his name was Brent or Bruce, and I would appreciate knowing SOON if any action has been taken in regards to him. If I don't hear from you within about 10 days of when you should have gotten this letter, I will be going to higher sources.
There are signs all over the E.R. saying, "This is a harassment/abuse free zone." For the first 3 E.R. appointments our family had after those signs went up, they were the best E.R. visits we had EVER had, so we thought something at the hospital had changed. Maybe the staff had been retrained and rules had been changed, but now I don't know if anything has changed.
My mother and I are seriously ill. I inherited her lupus, which affects all different organs at different times. We are seemingly punished for needing medical care. We bear a LOT of pain at home, and don't come to the hospital until we absolutely can't bear it and we think the incident might kill us, and then it seems we are treated badly as if to discourage us from coming back again.
Medical abuse causes a lot of problems, just as if a husband that she can't divorce is abusing a woman repeatedly. We cannot divorce our illness. We will continue to need emergency care. We try to avoid it, but there are times that we can't, and then the experience is a nightmare because we fear what kind of abuse/neglect we will face when we can barest even speak to remember the questions they ask us or defend ourselves. I can see why some people commit suicide or let themselves die by staying home---when they are faced with the fear of abuse again and again when seeking help. It gets to the point where you cannot face the abuse, combined with the medical crisis, one more time. We have nightmares again and again about being tortured when we need help in the E.R. We can't move away from Lethbridge. I think we show amazing courage to even come back to the E.R. when we KNOW we will be insulted and abused along with what else we are dealing with, but I beg of you to help this abuse stop, by taking one step against one male nurse that had no right to say or do what he did to me and my mother.
I kindly ask you for compassion and assistance in this matter, as life is getting increasingly hard to survive when we are being "punished" for having health problems.
Kind regards and with appreciation,
(my name here)


So how am I now? I continue to have these attacks every few hours that feel as if I am giving birth. I could have pushed out 25 babies by now if I had one baby with each attack. I would have rather done that than to get nothing out of it, because then I could give each child to someone who desperately wants a child. Today is Sunday so I can't get any clinic to help, but I called a nurse hotline that helps with medical questions, and that nurse thinks both my kidney and bowel that is touching my kidney could be infected. I REFUSE to go back to the hospital, so I hold a towel over my mouth as I scream through the attacks. Tomorrow I will call my Dr. and tell her what has been happening and ask if I can be treated at home rather than go back to be neglected and abused at the hospital. I am exhausted after what seems like going through labor every 2 hours. I am discouraged because of the pain and exhaustion. This too shall pass, but at this moment, it doesn't feel like it will pass. With this much pain, there is no "living". I am not eating at all, so because of my diabetes, my Dr. will have to get me treatment tomorrow, either at home or admit me to the hospital. Lupus is such a crazy insane disease! It attacks different parts of the body each day, and I didn't even have a fever with this, because lupus was so busy attacking my body that it did not fight the infection, so the infection continued to grow out of control. I'm sure I wore you all out...but I have no one on earth to talk to about this DRAMATIC life...so I blog it. I need your prayers that these attacks will stop. They are inhuman...TORTURE! Then to get abused when I seek help...I almost want to give up.
Bless you my dear patient friends!
Bluebirdy








Blessings:

1) The Lord helped me get my dozens of Christmas gifts wrapped and in the mail on time!

2) Mom did not suffer any ill effects physically or emotionally from the security guards

3) I am back online because we had a spare computer.

4) The Lord is with me, comforting me. HOW DO PEOPLE LIVE WITHOUT THE LORD IN THEIR LIFE???

Friday, 26 September 2008

PAIN! and finally, a GOOD hospital experience!

Photo by Jason Smith

I ended up in the E.R. again day before yesterday. I waited in pain in bed for a week, not wanting to deal with the abuse AGAIN...but finally the pain got too much and I went. It was such a good experience, it was a shock! Seems that so many things are turning around for me. New Dr,. found a remedy for fibro, maybe I'll find other remedies, a good hospital experience, knowing my husband is being protected no matter what. (And right now he has no utilities and no way to get out of that town to a place that DOES have utilities, so chaos will soon break out in that town, which I know he will be protected through, but so sad that he has to go through all of this.

On Wednesday I was treated so well it shocked me. I got in quickly, was seen quickly, given a good dose of medicine without the interrogation, and got out of there quickly. I think one reason is because my heart rate was so fast it scared them. The nurse said "Can your heart rate really be that fast?" I said "When my pain is this bad, it can be. My heart has stopped from this pain before." I have only had about 3 visits that good in 15 years. There were also signs on the walls that said "This hospital is an abuse and harassment free zone." So I wonder if finally that hospital was reported so many times that they got in trouble and had to start staff seminars about how to treat patients or something. Maybe because of the publicity of the man dying a few days ago in the E.R. waiting room after waiting 34 hours and not getting treatment, really put other E.R.s on their toes to really help people not go through that. The waiting room was almost empty, so maybe that story also scared a lot of people into staying home if they thought they would have to wait.

Some things are better since I started taking D-ribose. life is better since I found D-ribose. Life is brighter, more enjoyable. stress and pain are easier to bear. It seems to have helped my depression, diabetes, heart problems and fibromyalgia pain and fatigue...but unfortunately other health problems got worse because of overdoing and due to weather changes. The picture at the top just seemed so much like how I feel.

Lupus is such a horrendous disease. So little research is being done on it, and there are only 3-4 treatment options, all more dangerous than the disease, so we choose to just have each symptom treated as it occurs.

It is more painful than most cancer cases, lasts much longer, yet we are expected to carry on and keep our lives going,and to smile and not show our pain, and we very rarely are offered pain relief because of the fear of addiction. Doctors still don't realize that there is a difference between addiction and dependence, and that its very rare for a person with chronic severe pain to get addicted. Their body gets dependent on those meds, but not addicted. There is a scripture that says something like "There will be scourges where people will pray for death to take them, but death will not come." There are sure a lot of diseases that have developed in the past 15 years or so that fit that scripture, and lupus is one of them. The other day was Mom's 76th birthday, and i thought how very strong she is to go through this pain for so many years, and I can't imagine going through that pain for another 40+ years! I guess we do what we think we can't, one hour and one day at a time.

They named Trigeminal Neuralgia right when they named it the suicide disease. It truly is among the most painful things a human can bear, and I laid here for a week, choosing to suffer with that pain and try to wait for it to pass, rather than get more abuse from the E.R. I went to the clinic to see my new Dr. hoping she would be able to give me a pain shot, but she said they don't give pain shots in the clinics in town anymore, so I would STILL have to face the E.R. I found a support group for people who have been abused by medical staff, and I think I will joined it. It has really affected parts of my personality to not be able to avoid being abused again and again. It shows that it is happening A LOT if there is a world wide support group for it.

Got to quit for now. the pain is too much again. I have most of my readers in my prayer journal and I am praying for you.

Blessings,

BLUEBIRDY


Friday, 1 August 2008

A DAY TO CELEBRATE LIFE!!!




One year ago in July I was told I had 1 year to live. This is August 1st, so my 1 year deadline (no pun intended, lol) is over! I came close a few times to not making it, but now I am living on...not borrowed time...but on God given time! WOOHOO! Since it's not my time to go yet, and I obviously have something left to finish here on earth, I am praying, researching all I can to get feeling better and praying for the strength to do the things that I find that I need to do to get stronger and healthier.
Thanks to all who have congratulated me!
Blessings,
Bluebirdy

Saturday, 19 July 2008

WHAT/WHO ARE WE?

WE ARE NOT HUMAN BEINGS GOING THROUGH A 
SPIRITUAL EXPERIENCE.

WE ARE SPIRITUAL BEINGS GOING THROUGH A 
HUMAN EXPERIENCE.

Friday, 18 July 2008

God Said No



God Said No

I asked God to take away my habit .

God said, No.

It is not for me to take away, but for you to give it up
.

I asked God to make my handicapped child whole
...
God said, No.

His spirit is whole, his body is only temporary


I asked God to grant me patience.

God said, No.

Patience is a by-product of tribulations;

it isn't granted, it is learned.


I asked God to give me happiness.

God said, No.

I give you blessings; Happiness is up to you.


I asked God to spare me pain.

God said, No.

Suffering draws you apart from worldly cares
and brings you closer to me.

I asked God to make my spirit grow.

God said, No.

You must grow on your own! ,

but I will prune you to make you fruitful.


I asked God for all things that I might enjoy life.

God said, No.

I will give you life, so that you may enjoy all things.


I asked God to help me LOVE others, as much as He loves me.

God said...Ahhhh, finally you have the idea.



THIS DAY IS YOURS~ DON'T THROW IT AWAY.





Tuesday, 15 July 2008

Prayer Journals, anyone?


I think I will start my prayer journal today, writing columns for
1) the date,
2) the person,
3) the need, and
4) when the problem was resolved.
    Then my fibrofog won't make me forget some that need prayer. I was surprised to find out that so many people have a prayer journal, that you can even buy pre-printed ones in Christian bookstores and online Christian bookstores. I talked to the owner of one of these stores, and she said it seems to have been created shortly after the internet was created; when people were meeting so many people online that needed prayer.
     How many of you have a prayer journal?
Blessings,
Bluebirdy

Friday, 11 July 2008

THANKS For all your prayers!

I want to thank you all for your prayers. I do feel a difference when people pray for me, and I think that the episode of partially losing my vision may have lasted longer without prayer.
    I did panic at first, but then had to calm myself down because I was alone here and had to think of what I should do.  I called my Dr. to tell him that I woke up and could not see clearly, everything looked like I was looking through frosted glass. I wondered if it could be a stroke or something, due to having heart symptoms all week, but he said he was quite sure that the lupus had now caused enough damage to causes Multiple Sclerosis. He said that he had suspected MS for a while, but this confirms it, and even if I did go to the E.R. that night, and got the tests, there is nothing that can be done for the vision problem anyway, and that it usually passes in a week or 10 days. I was pretty upset. I could not imagine not being able to see for a week to 10 days and taking care of myself alone...and trying to help Mom who lives with me!  But it only lasted about 2-3 days. It was a REAL growing experience to teach myself to be calm and not panic, and not be completely frustrated by not being able to do anything for myself, and being afraid that I might be like that forever, and fearing about my future.  I felt the walls to get to the bathroom and felt my way to my little beverage fridge to get Ensure nutrition drink or water or an apple, so that did me for 3 days.
     Mom ended up in the E.R. that night because there was a terrible storm rolling in, and when the weather changes quickly like that, our lupus really decides to attack us, and it hits in different ways each time and in each person. For her it was her kidneys, kidney pain is overwhelming and also they are not cleaning her blood like they should, so she is full of infection which has come out with infected sores on her back.
     I wish I had a bit more notice, I would have asked her to take our cousin, who offered to go with her, she was neglected for about 9 hours, then seen, and not given any treatment. What a waste. I have always gone with her, so she never knew about the neglect and abuse from our hospital when you go alone. I don't think she'll try to go alone again.
     Last July I was told I have 1 year to live, so I was waiting until the end of this month to celebrate that I beat that doctor's opinion, and then when I lost my vision, I did start to wonder if the Dr. knew something I didn't know. The Dr. said it will happen again and again, which is upsetting. I need my husband here if that is going to happen.     
     We are dealing with the highest up people involved in getting my husband here because of family hardship, so we will see what the Lord decides. 
     Thanks again!  GOD BLESS MY ONLINE FRIENDS!
Blessings,
Bluebirdy
    

Tuesday, 1 July 2008

DO NOT WORRY


Wednesday, 18 June 2008

STILL I will praise Him!!!

My lupus returned with a vengeance, seemingly to make up for all the days that I had without much pain. I've been doubled up, unable to think much more than "Lord, please help, or make it stop" until just a few hours ago. I didn't know a person could have so much pain and still stay conscious. I don't even want to go to the E.R. for pain relief because I would have to go alone, and don't have the strength to defend myself in this crazy hospital. My heart and kidneys are causing more symptoms than I can bear all at once; but STILL no depression! This is SOOO wonderful to have a clear mind and no fear! Usually intense pain and days without sleep leave me unable to think, and fearful of the future, but this time it is different, and it is wonderful. It is so much easier to handle the pain and every other trial in life when the depression is gone. Now I know what a huge factor depression can be in the decisions a person makes and how a person bears trials. I am thanking our very loving Lord very often for this, still a partial miracle. There's no explainable way a person can go to sleep crying and praying, and wake up free of pain and depression that has been there for 10 years! I have experienced many such partial healings in my life. It is a sure sign that there is a creator who hears us and cares about our trials. I should have passed away long ago. Last July I was given 1 year to live, so at the end of next month, I can silently smile in smugness that the Dr. was wrong. (I know that's not very nice, but I'm not perfect yet, the Lord's not finished with me yet. lol) I will go when the Lord wants me to, not when a man decides. Technically, I guess he was right, I did die when my heart stopped in April, but I' m still here. Every time a Dr. gives me an amount of time, he will say "I don't expect you to live more than 2 years or 1 year", and I think "So? Then my heart will stop, I will have another near death experience, and I will be sent back to earth to finish what I was sent here to learn or to do."

I have written to the highest up official in Canada (who would be in charge of getting my husband home) to get my husband here because of family hardship. I wasn't getting far with a lawyer, because the lawyer demanded HUNDREDS of hours of paperwork that I totally burned out on doing. I will keep contacting that office every 2 weeks to keep them remembering me so something will be done SOON. Without this depression, I DO feel like I could be a wife after all. If my husband helps with the physical things, I can help him re-adjust to life. I don't know how bad his post traumatic stress disorder will be, but he's taking meds for it, and from when I try to call him to wake him up, I know he sleeps like a rock, so I hope he doesn't have bad nightmares, etc. It will be a big adjustment for him, and I can be his emotional pillow, if he helps with the physical duties.


It's amazing and refreshing to realize that when the depression is gone, and when your mind is freed from constant pain, you can start to look around you at how things look or how they should look, you can find new interests. It is so very enlightening to now understand how people in chronic pain think and feel when pain overtakes their whole existence. When my mind was freed from the pain enough that I could think of other things, I could think of sewing, decorating, cooking, gardening, and could see things that needed cleaning and improving like I could not see when I was suffering. I bought many patterns that are out of print, by my favorite pattern designer, Khaliah ALi (Muhammad Ali's daughter) and bought some of the most beautiful fabric I ever saw, and I discovered something that I think will be my new hobby and interest! I have always loved learning how housewives did things before the days of modern appliances or cleaning products. I always thought I was born in the wrong era (except that I am so very grateful to live in the age of internet). There are many websites about retro-housewife and vintage housewife etc. with old pictures from the 1950s and before, showing how women did their hair or cleaned or cooked things before packaged food was available, and what they used for medicine and cleaning products, and all the old wives tales that had some wisdom to them, that have not been passed down to any generation since the 1970s. They fascinate me. I love the femeninity of the clothes and hairstyles and the joy they took in their homemaking profession. I even love the old fashioned aprons. You'll probably see more of this in the future...if the Lord allows me to have enough time not overwhelmed with pain. I found a new author who I would like to collect all of her 25 books. Her name is Alexandra Stoddard. I told my sister this, who I was not raised with, because she left home when I was small, and she told me that is her favorite writer too, and she DOES have all of her books! Strange isn't it? I have spent all this time taking care of spiritual things, so I didn't really have a chance to take care of how things look or appear, didn't really have the strength to make my home look beautiful since I moved back to Canada 10 years ago...so maybe now life can be a bit more balanced and I can concentrate on the little inexpensive joys of life as well as spiritual things.

I get by, with my Lord, and with a little help from my angel friends, each one hand picked by the Lord. What precious, eternal jewels our friends are. We can't take anything with us when we go, but we will forever have or friends when we all meet again in the next world.


These BEAUTIFUL graphics that say "God bless my online friends" were made by a dear, artistic genius, online friend, Helen Goens. Thanks TONS HELEN!

Tuesday, 27 May 2008

THANKING THE LORD FOR MY MIRACLE!


FINALLY I HAVE WONDERFUL NEWS!!!
I guess it's true that its always darkest before the dawn.

I was being bogged down with so much legal paperwork to get my husband home from the war zone because of his family needing him here (me and my family), that I would need 3 or 4 secretaries to do it all. I spent a few days working 16 hours a day and I that was about 1/10th the amount I still have to do. I am continually getting emails telling me horror stories of people in my situation and that I should not put my husband in the situation of living with a sick wife, etc. and it finally made me snap emotionally. I spent days sobbing, in confusion so bad I could barely put sentences together. I just felt hopeless. I wondered if what I had was a nervous breakdown, so I looked it up and one site explained:

In breakdowns of the depressive type, there may be uncontrollable crying, loss of pleasure in all activities, dramatic weight loss or weight gain, sleep disruption or extreme sleepiness, confusion, disorientation, extreme feelings of worthlessness, guilt, despair and hopelessness.

That's what I felt. So I begged the Lord to please heal at least that horrible feeling and sobbing and confusion, because He is the only help I have. I fell asleep and woke up feeling better than I have felt in a couple of years! My mind is clear, my emotions are balanced, I am on less than half of my pain medicine, I have not needed any diabetes medicine at all! I am almost afraid to say I am completely and forever healed, in case it will jinx me, but for however long the Lord allows me to feel like this, I PRAISE AND THANK HIM and am enjoying life and every moment! Feeling good is like heaven on earth. You can handle ANYTHING if you've got your health!!
I had to even stop talking to my husband for quite a few days because to even think of all the torment this is, would make me shake and sob. For about 4 days I prayed so very hard for the Lord to give me strength and courage and heal my mind and heart, my unstable emotions, and make me physically stronger...and one morning about 3 days ago I woke up feeling like a different person! My pain meds are less than half, depression is gone, fear is gone, I feel like the Lord can carry me through anything now. Before I kept WANTING to believe it, but I always thought of how much more I would have to suffer through each trial even with His help. . If the Lord helps me stay in this state of mind, things will be fine, and I can see every trial will just be another lesson, not an attack from Satan.
My Dr. was only in the office 2 mornings then took off again so I'm on my own again, trying to figure out if increasing my exercise makes me weaker or stronger, but praying for healing of my heart (physical) if nothing else. Then I'd have more energy to help my hubby when he gets here.
One good thing, the war seems to be easing up where my hubby is, so he is going to see tomorrow if the Taliban have gotten out of the court house so we can get the papers we need. Whatever way it goes, whatever happens, it will be ok. This is so wonderful, I feel like my former strong self that I used to like and was not ashamed of, is back. It's a healing, for sure. Another blessing and small miracle when the Lord knew I could not handle any more. How long it will stay, I don't know. Last time it was 1 week, a few weeks before my Dad passed away. I hope this time of remission is longer.
I pray that all of my beloved friends/readers can experience this SOON!

HOMEWARD BOUND (by Sheila Wall)
Please use author's name when using ANY poetry or articles.

Though dreams are shattered
And friends have gone,
Though winds blow cold
And storms stay long,
Though pain and heartache
Do not belong,
And still they stay, I will sing my song.
Then they will see I'm not around to
let dark shadows get me down,
And though hard problems
do me surround,
I'll let them know I am homeward bound.
I'll wear a smile through thick and thin
Then they will see that we can win
And things are better with a high chin
For then all things can shine again.

CHEERY- by Sheila Wall
A special feeling's in the air,
Can't tell you what it is that's there,
All I know is I can say
Something good's gonna happen today!

The air is cool, the sky is white,
Still I know there's something right!
Someone's on my side today
And no one's gonna take it away,
Cuz something good will happen today!

Blessings,
Bluebirdy

Friday, 23 May 2008

Finding Purpose When God Chooses Not To Heal US

I have had so many wonderful new friends, spiritual, loving, encouraging friends that have come to me through this blog. Many have been through the same problems I have, and have overcome them, some haven't, but try to understand anyway. I believe the Lord can heal anytime He wants, but often he chooses not to. This does not indicate a lack of faith of the person who is suffering. There are many biblical accounts of people not being healed, but they each had a purpose.

Some of my friends are getting angry at me, impatient with me for not getting well yet. They think I must not pray enough, or just don't have enough faith. Both assumptions are wrong. I love this quote about being healed...or more about NOT being healed:


God does heal today as He did in Bible times. He also uses our physical and mental weaknesses to develop our spiritual growth—as He did with Apostle Paul’s thorn in the flesh. (2CO 12:7) I believe that Jesus used a variety of healing methods so that we could not develop five sure-fire steps to miraculous healing on our own. Jesus focuses us on what is important to Him: “The Spirit gives life, the flesh counts for nothing.” (John 6:63) We can pray for healing, “naming it and claiming it,” but we must also be willing to live in our present, or deteriorating condition, if that’s God’s plan for us. With our pain comes the sensitivity to comfort others as we ourselves have been comforted in Christ. God is the final authority on how, if, and when healing occurs in our life. We are assured that we will have no physical trials when we join Him in Heaven. (Phil. 3:20-21)
---JONNIE WRIGHT http://www.jonniewright.com/beliefs.htm

I would LOVE to be healed today, and have the health enough to do everything possible on this earth, but not everyone has the same mission. Though I admire the people who have been healed and try to tell me that I SHOULD be healed as well, and I try to live like those examples, I think I need to try to save my sanity by not denying my illness and begging for healing until I am so upset that I almost have a nervous breakdown and can't do anything but sob....instead, maybe it's time to accept that this is what the Lord's will is for me, and "BE STILL", and know that HE IS! And to learn the lessons I'm supposed to learn from illness, and let others learn the lessons from knowing a person who might not be healed.

This is a time of great transition in my life and I am ready for it and welcoming it. I will seek HIS strength when I have none, and I will try not to beat myself up mentally for not being healed for some reason. This is the Lord's will, I must live with it and learn from it, or my pain has been for nothing. I hope those faithful friends who have grown weary that I have not yet been healed, will also learn from this, that not all people will be healed, and will welcome me back into their circle of fellowship with the Lord.
Blessings,
Bluebirdy.

Somebody's Praying for Me

Somebody's prayin', I can feel it

Somebody's prayin' for me

Mighty hands are guiding me

To protect me from what I can't see

Lord I believe, Lord I believe

Somebody's prayin', for me.







Angels are watchin', I can feel it

Angels are watchin' over me

There's many miles ahead 'til I get home

Still I'm safely kept before your throne

'Cause Lord I believe, Lord I believe

Angels are watchin' over me.







Well, I've walked through barren wilderness

Where my pillow was a stone

And I've been through the darkest caverns

Where no light had ever shown.

Still I went on 'cause there was someone

Who was down on their knees

And Lord. I thank you for those people

Prayin' all this time for me.







Somebody's prayin', I can feel it

Somebody's prayin' for me

Mighty hands are guiding me

To protect me from what I can't see

Lord I believe, Lord I believe

Somebody's prayin' for me...

Somebody's prayin', for me








SONG BY RICKY SKAGGS

THANKYOU FRIENDS for all your prayers.
Bluebirdy

Wednesday, 21 May 2008

Help Lord, PLEASE-- a prayer and update

I'm in so much pain physically and emotionally, I can't bear it, and can't get help for it. I keep begging you Lord to guide me to know what to do to get feeling better, and to help me do it, but I am not getting the message. Maybe because the pain is louder than your "Still small voice" that guides us? Too much stress in too short of a time. Too long for me to detail everything that happened just this month and I don't have the strength. I spend almost every waking moment in prayer or in researching how to get better, since the doctors don't want to treat me and since all I get from them is abuse anyway. Naturopathic medicine is not abusive and not toxic like prescriptions, but VERY expensive, and there are thousands of treatments. Don't know where to start. Can't even think. I feel like I'm running out of life like a battery or cell phone slowly running out of energy...I hope I can find something to "recharge" me soon, or I fear the misery I will be in. I don't fear death, just fear more suffering. I can't even put on an act of positivity right now. I don't have the strength or the clear mind to do it. How can a person suffer so much and not go unconscious? If Satan is trying to get me to forsake you, like he tried with Job, he is wasting his time. I will never deny you or your love. Thankyou for sending all my earth angel friends who help me again and again when I can't think for myself. In the name of Jesus Christ, Amen.

Saturday, 17 May 2008

Udpate, and "My life of Luxury" WE ARE SO VERY BLESSED!





Hello Friends!

I decided I'd better take some of my energy to post something. Since my heart stopped while getting groceries a few weeks ago, I have been as weak as a baby. Too weak to think, to type for very long, to even breathe.

NO MATTER HOW DIFFICULT MY LIFE IS RIGHT NOW, I/WE ARE GREATLY BLESSED!!!

  • If you woke up this morning with more health than illness,you are more blessed than the million who won't survive the week.
  • If you have never experienced the danger of battle,the loneliness of imprisonment,the agony of torture or the pangs of starvation,you are ahead of 20 million people around the world.
  • If you attend a church meeting without fear of harassment,arrest, torture, or death, you are more blessed than almost three billion people in the world.
  • If you have food in your refrigerator, clothes on your back, a roof over your head and a place to sleep,you are richer than 75% of this world.
  • If you have money in the bank, some in your wallet, and spare change in a dish someplace, you are among the top 8% of the world's wealthy.
  • If your parents are still married and alive, you are very rare, especially in the United States.
  • If you hold up your head with a smile on your face and are truly thankful, you are blessed because the majority can, but most do not.
  • If you can hold someone's hand, hug them or even touch them on the shoulder, you are blessed because you can offer God's healing touch.
  • If you can read this message,you are more blessed than over two billion people in the world that cannot read anything at all.
  • You are so blessed in ways you may never even know.
  • If you are feeling blessed, repay the blessings bestowed unto you and do something for others.
  • A blessing cannot be kept. If it stops with you, then the blessing will disappear. The blessing will only keep working if it is continuously passed around.
  • If you are a recipient of a blessing, keep the blessing working by being the source of blessing to other people.

I started researching what people should do to recover after a heart attack. The literature says that for the first week the patient isn't supposed to do ANYTHING physical at all. No climbing stairs, no walking farther than about 10 steps, nothing. For the first month they are supposed to avoid any traumatic news or emotional upset. That's kind of impossible in this world. I did exactly what I shouldn't have, so probably made my heart problem worse! I just want to be well! I have been carrying in heavy groceries and using the stairs (almost falling to my knees at the top), and there has been overwhelming emotional things happen about every other day, from the amount of paperwork that the lawyer is asking me to do, problems from the medical system, a disagreement with a friend, and now it has been suggested to me to contact the Civil rights union in Canada, to try to get my husband home.
I don't know if I can handle the stress of starting this case all over again with another group (Civil Rights Union). Yes I would die for my husband, but I sure don't like the suffering that comes before the dying.

Someone said "The hard tasks we do right away. The impossible takes a little longer." Well, it SEEMS impossible, but if it's God's will, HE will help us find a solution to the impossible.

I was given 12 assignments by the lawyer. I worked for 16 hours on it the other day, that was the first assignment. It will take a very long time if they all take 16 hours, because I can't work on it every day. I do wonder if the legal system is spreading this out over many many hours so they can get paid more (Legal aid is paying for it, so maybe they figure they are not hurting me by taking more hours to do it.) I don't know anymore. Everything we are being told to do, every direction and option that we look at to get together seems to be blocked by a brick wall, so we sit in the middle, walled in, no options, not able to plan for the future because we don't know if we will be planning for a couple or for 2 separated people, but can't bear to call it quits, either. I have told him many times that it would be OK if we got the marriage annulled and he married someone else. If he can't get to Canada and I am too sick to move to another country, I don't want him to waste his life. He gets quite upset. He wants to be with me no matter how hard it is and no matter how ill I get. It seems like he thinks this is the Lord's will, and that it is sort of like a calling for me to be ill, because we and others around us learn from people who are ill, and he thinks it is his calling to be married to me, because he will learn from it and will be blessed for helping someone who needs so much help. One person had an interesting theory. He said that if it IS God's will that I don't get cured, and that my hubby be with a sick wife, then it wouldn't matter if he was married to me or someone else, the other wife would also become sick...so he might as well keep trying to be with someone he loves, rather than break up and find someone else.

Having NO control over our life or our future or our options is so discouraging. It's enough to make you lose hope, especially when you are too weak to think of creative alternatives.


Oh well, I will "Lean not on my own understanding", because "The Lord's ways are not our ways". Having so little strength to do anything has made me "BE STILL, AND KNOW THAT HE IS." It has made me take time to listen to the answers to my prayers, not just talk to God. Why pray if you don't listen for the answers?

Mom and I got food poisoning night before last from Salsa in a plastic container. I couldn't figure out how that could become poisonous. The expiration date was fine. Then a friend that works in a fast food place told me that if tomatoes are frozen, then left unrefrigerated too long, they can grow bacteria or spoil. The store must have left it off the shelf too long. Wow that was horrible. I am glad we had 2 bathrooms. We were laying on the floor there, too weak to get back to our room in between our sessions of being sick. Too sick to go to the E.R. for sure. I thank God it only lasted one night and was not worse than it was.


Last week California approved gay marriages. Every time any other state or province has done that, a natural disaster has happened days later. In Ontario, the SARS virus hit. In B.C., a horrible flood occurred. I can't remember which state it was, but I remember a tornado or something happening there when they approved gay marriage, and so I was wondering what would happen in California. Well now in the news they are telling about a massive amount of frogs coming up through the storm drains in some part of California, so many that it looked like a plague! Strange!


No matter how hard things are for my family, I still pray for those who are going through things that are so much worse, like those in the Beijing earthquake, and the Myanmar cyclones and other Asian areas cyclones,
MORE, BIGGER aftershocks happened today in Beijing and they have no way how they will clean up all the debris and bodies that are still hidden under the debris before the Olympics in a few months. Then in the Southern USA, a tornado a few miles wide wiped out whole counties! The newspapers are saying that USA doesn't have enough manpower to help, because Bush sent the men to other countries, and they don't have enough money to help, because he is bankrupting the country, causing a serious depression by spending 8 billion dollars a day in the war. God bless all of them. I would like to support the war by bringing all our boys home. You have the right to disagree with my opinion, but thank the Lord we are allowed to have free thought, free speech, freedom of the press, etc. I could not say these things in MANY MANY countries of the world.

Well, this took me many many hours. I am worn out.
Blessings to you all!
Bluebirdy


Sunday, 13 April 2008

OUCH! OWIE! OH PAIN!



Have you ever felt like this duck ?




I am not writing this to upset anyone or to get sympathy. My lupus group asked me to post my progress, good or bad, through this medical abuse situation I am going through, so medical
people can understand pain better.



Can't write much, too much pain, but wanted people to know that God is helping me. This will take a few hours for me to get my thoughts out. God speaks to us through "the still, small voice inside", and right now my pain is "louder" than that voice, so I don't get as much comfort when the pain is worst, but before the pain got too bad, I was inspired to look for a "patient advocate" to help me get a new Dr. In the USA there is 1 in every hospital, but when I researched it here 2 days ago, I learned that when you sign papers to be admitted to a Canadian hospital, you are signing something that says that you CAN NOT have a patient advocate help you! Then what is a patient advocate for?
Medical system could do so much if it
was not so corrupt.


Tomorrow I will try to start to make calls to get help. There is no way I can even get out of bed long enough to go visit up to 20 doctors to find one that will accept me. I tried 17 before. Was insulted, abused, accused, neglected, and I don't have strength to bear all of that now when I am curled in a ball in pain. God has always helped me find answers before, He will help me again. I almost lost hope because I was "leaning on my own understanding", but God knows answers that I don't know, and He will help me find the solution again.



I understand now more than ever why trigeminal neuralgia is called the suicide disease, but I also have pain throughout my whole body to try to bear with the trigeminal neuralgia. It gets worse as the day goes on, and by evening I can't think anything except to silently pray, and a few times I even prayed that if this was not going to get better, or if I could not get help, if God would just take me. I can barely remember my own name when it gets that bad. It makes chest pain like when this pain made my heart stop before, so I wonder if I will have another NDE. (Near death experience.) Since He did not take me, that means He WILL find some way for the pain to get less...whether its a natural way, through His healing, or through the medical world.

It's ironic that I go unconscious from diabetes when I don't have bad pain, yet when I am in this horrid pain, I can't pass out to escape the pain. I am amazed a person can hurt this much and not pass out.

I want medical people who read this to understand that things are worse than death, to learn that much chronic pain is worse than anything a cancer patient would feel, yet we get called "drug seekers" and get denied any help. Cancer patients' pain will go away. Either they will die, or they will be cured. Lupus and and other diseases do not go away. People with these diseases will live for 40 years+ in pain, being expected to keep up with everyone else and to keep living a high paced, high stress life.

This article took 6 hours! (lots of resting between writing)
I know that Heavenly Father is helping me through this,
and I am SO grateful!I know He will help me get better so that I can finish my purpose for coming to earth. (His plan for my life).
Blessings! I'm praying for all of you that have become my online friends!
Bluebirdy

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